Public awareness of and attitudes towards research biobanks in Latvia

Autor: Mezinska, Signe, Rovite, Vita, Mileiko, Ilze, Kaleja, Jekaterina, Santare, Daiga, Tzivian, Lilian
Jazyk: angličtina
Rok vydání: 2020
Předmět:
Bioethik
0301 basic medicine
Health (social science)
Public opinion
Sociology & anthropology
Einstellung
0302 clinical medicine
Informed consent
Surveys and Questionnaires
Medical Sociology
Citizen science
030212 general & internal medicine
Biological Specimen Banks
lcsh:R723-726
Eurobarometer
Health Policy
Forschungspraxis
Lettland
Biobank
Donation
ddc:301
Psychology
bioethics
participant
Research Article
research biobanks
informed consent
03 medical and health sciences
Public attitudes
Humans
Teilnehmer
Medical education
Research biobanks
business.industry
Citizen journalism
Latvia
Issues
ethics and legal aspects
030104 developmental biology
Attitude
Soziologie
Anthropologie
Philosophy of medicine
attitude
öffentliche Meinung
research practice
public opinion
business
lcsh:Medical philosophy. Medical ethics
Medizinsoziologie
Zdroj: BMC Medical Ethics, Vol 21, Iss 1, Pp 1-11 (2020)
BMC Medical Ethics
ISSN: 1472-6939
Popis: Background Public awareness and engagement are among the main prerequisites for protecting the rights of research participants and for successful and sustainable functioning of research biobanks. The aim of our study was to analyse public awareness and attitudes towards research biobanks in Latvia, and to compare these data with the results of the 2010 Eurobarometer study. We also analysed the influence of awareness and attitudes towards biobanks on willingness to participate in biobank studies and on preferred type of informed consent. Methods We developed a 12-question survey repeating seven questions about biobanks from the 2010 Eurobarometer questionnaire and adding five others. After describing the study variables, we performed a two-stage analysis of the results. In the first stage we analysed differences between the answers from 2010 and 2019 and conducted univariate analyses of relationships among particular variables, and between those variables and the socio-demographic characteristics of participants. In the second stage we investigated multivariable associations of willingness to participate and type of consent with awareness, trust and the socio-economic characteristics of participants. Results According to our study, the general public in Latvia is still not well informed about research biobanks. Fewer respondents have heard about research biobanks than in 2010. At the same time, the number of respondents who are willing to donate biological samples and personal data to a biobank has increased, e.g. the number of respondents who would definitely or probably be willing to provide information about themselves has increased from 25.8.% to 40.7 since 2010. Overall, concerns about the donation of different types of biological samples and data to a biobank have slightly decreased. Conclusions Public awareness about biobanks is important for their sustainability. It needs to be increased not only by traditional methods of informing the public, but also by more innovative and participatory approaches, e.g. by citizen science projects. There is a need to strengthen the public visibility and trustworthiness of ethics committees in Latvia in the field of biobanking.
Databáze: OpenAIRE
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