Using Digital Ethnography to Understand the Experience of Women With Pelvic Organ Prolapse
| Autor: | Carine Khalil, Yuliya Zektser, Kristina Vaculik, Gabriela Gonzalez, Jennifer T. Anger, Corey W. Arnold, Christopher V. Almario, Brennan Spiegel |
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| Rok vydání: | 2021 |
| Předmět: |
Urology
Decision Making 030232 urology & nephrology MEDLINE Reproductive health and childbirth Hand coding Latent Dirichlet allocation Grounded theory 03 medical and health sciences symbols.namesake 0302 clinical medicine Clinical Research Cultural Medicine Humans Data Mining Social media Medical education Practice 030219 obstetrics & reproductive medicine business.industry Health Knowledge Prevention Obstetrics and Gynecology Online community pelvic organ prolapse Risk perception Attitudes Anthropology Grounded Theory symbols Surgery Female Patient Safety Generic health relevance business Social Media qualitative research Anonymity |
| Zdroj: | Female pelvic medicine & reconstructive surgery, vol 27, iss 2 |
| Popis: | Objective To characterize the decision-making process and illness experience of women with pelvic organ prolapse (POP) using large-scale social media analysis. Methods Digital ethnographic analysis of online posts identified through data mining was performed. Grounded theory methodology was applied to 200 posts via traditional hand coding. To supplement our qualitative approach, we applied a Latent Dirichlet Allocation probabilistic topic modeling process to review the entire data set of identified posts to ensure thematic saturation. Results There were 3451 posts by 2088 unique users from 117 websites worldwide that were identified via social media data mining. We found that the anonymity of online forums allowed for information and support exchange among women with POP. Our analysis revealed that the exchange of online information aids in the decision-making process and, in some instances, appears to be the primary source of information. There was confusion about the anatomical and surgical complexities of prolapse. Our study also identified misconceptions, perceived risk factors, prevention methods, and management recommendations that were discussed online. Conclusions This large-scale online community-based analysis demonstrated the utility of social media to better understand women's experiences with POP. Thematic findings highlighted essential concerns and challenges involved in the surgical decision-making process and the understating of the anatomical complexity of sector defects, specifically to cystocele, rectocele, State specific defects. |
| Databáze: | OpenAIRE |
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