Cancer worry among Norwegian male BRCA1/2 mutation carriers

Autor: Målfrid Råheim, Nina Strømsvik, Eva Gjengedal
Rok vydání: 2011
Předmět:
Male
Cancer Research
Anxiety
Medical disciplines: 700::Clinical medical disciplines: 750::Oncology: 762 [VDP]
Genetics(clinical)
Medical disciplines: 700::Health sciences: 800::Nursing science: 808 [VDP]
Breast and ovarian cancer
Genetics (clinical)
media_common
Ovarian Neoplasms
medicine.diagnostic_test
BRCA1 Protein
Middle Aged
Oncology
Feeling
language
Female
medicine.symptom
Worry
Clinical psychology
Adult
Heterozygote
medicine.medical_specialty
media_common.quotation_subject
Genetic counseling
Breast Neoplasms
Genetic Counseling
Norwegian
Male fear of developing cancer
Truth Disclosure
Affect (psychology)
Article
Male BRCA 1/2 mutation carriers
Genetics
medicine
Humans
Genetic Predisposition to Disease
Genetic Testing
Men and genetic counselling
Psychiatry
Aged
Genetic testing
BRCA2 Protein
Family Health
business.industry
Men’s health
language.human_language
Mutation
business
Qualitative research
Zdroj: Familial Cancer
ISSN: 1573-7292
1389-9600
DOI: 10.1007/s10689-011-9456-8
Popis: This qualitative study explored the experiences of Norwegian men after being identified as BRCA 1/2 mutation-positive. Only limited knowledge is available on this topic; therefore, the aim of this study was to gain a deeper insight from the men’s own perspectives. Data were collected from in-depth interviews with 15 men and seven of their partners. The participants described fear of cancer development, and two main narrative patterns were identified: fear for their own health, including fear of developing cancer, and negative feelings about responsibility for others’ health. The men expressed fear of developing cancer themselves and described a need for genetic risk information. They were also deeply concerned about how the mutation might affect their children and other relatives. There is a need for guidelines concerning genetic risk information and follow-up programs for male BRCA 1/2 mutation carriers. This study adds valuable contextual insights into their experiences of living with fear of cancer. publishedVersion
Databáze: OpenAIRE
Externí odkaz: