Taking ethical photos of children for medical and research purposes in low-resource settings: an exploratory qualitative study
| Autor: | Jennifer Hall, Jay Halbert, Helen Brotherton, Delan Devakumar, Audrey Prost, Andrew Clarke |
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| Rok vydání: | 2013 |
| Předmět: |
Health (social science)
media_common.quotation_subject Guidelines as Topic ComputingMilieux_LEGALASPECTSOFCOMPUTING Context (language use) Literacy Health(social science) Ethics Research Researcher-Subject Relations 03 medical and health sciences 0302 clinical medicine Informed consent Photography Humans Confidentiality 030212 general & internal medicine Child Qualitative Research media_common Ethics Physician-Patient Relations Research ethics Medical education Informed Consent Research Health Policy Focus Groups Focus group humanities Issues ethics and legal aspects Philosophy of medicine 030220 oncology & carcinogenesis Law Telecommunications Teleconference Power Psychological Comprehension Psychology Research Article Qualitative research |
| Zdroj: | BMC Medical Ethics |
| ISSN: | 1472-6939 |
| DOI: | 10.1186/1472-6939-14-27 |
| Popis: | Background Photographs are commonly taken of children in medical and research contexts. With the increased availability of photographs through the internet, it is increasingly important to consider their potential for negative consequences and the nature of any consent obtained. In this research we explore the issues around photography in low-resource settings, in particular concentrating on the challenges in gaining informed consent. Methods Exploratory qualitative study using focus group discussions involving medical doctors and researchers who are currently working or have recently worked in low-resource settings with children. Results Photographs are a valuable resource but photographers need to be mindful of how they are taken and used. Informed consent is needed when taking photographs but there were a number of problems in doing this, such as different concepts of consent, language and literacy barriers and the ability to understand the information. There was no consensus as to the form that the consent should take. Participants thought that while written consent was preferable, the mode of consent should depend on the situation. Conclusions Photographs are a valuable but potentially harmful resource, thus informed consent is required but its form may vary by context. We suggest applying a hierarchy of dissemination to gauge how detailed the informed consent should be. Care should be taken not to cause harm, with the rights of the child being the paramount consideration. |
| Databáze: | OpenAIRE |
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