| Autor: |
Vincent J. T. Peters, Levinus A. Bok, Lieke de Beer, Joyce J. M. van Rooij, Bert R. Meijboom, Jan Erik H. Bunt |
| Přispěvatelé: |
Department of Management, Research Group: Information & Supply Chain Management, Tranzo, Scientific center for care and wellbeing |
| Jazyk: |
angličtina |
| Rok vydání: |
2022 |
| Předmět: |
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| Zdroj: |
Journal of Applied Research in Intellectual Disabilities, 35(5), 1208-1216. Wiley-Blackwell |
| ISSN: |
1360-2322 |
| DOI: |
10.1111/jar.13015 |
| Popis: |
BackgroundTransitioning from paediatric medical care to adult care is a challenging process for children, parents and healthcare professionals. The aim of this study was to explore the experiences, concerns and needs of parents of children with Down syndrome and of professionals regarding this transition.MethodA qualitative study was performed using semi-structured interviews with 20 parents of children with Down syndrome and six healthcare professionals.ResultsWe showed that parents and professionals have concerns during each of the three distinct phases of transition (preparation, transfer and integration). Data disclose specific concerns regarding communication, continuity of care and rebuilding trust. We propose a framework for the transition to adult care.ConclusionsThe transition in medical care for children with Down syndrome should be flexible, patient-centred and coordinated together with patients and parents. Only in ensuring continuity of care will individuals with Down syndrome not get lost in transition. |
| Databáze: |
OpenAIRE |
| Externí odkaz: |
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