Evaluation of a Transition to Survivorship Program for Pediatric, Adolescent and Young Adult Cancer Patients and Caregivers

Autor: Kristin Bingen, Jeffrey Karst, Lynnette Anderson, Sherilynn Chan, Anna Jordan, Jocelyn Morin, Julie Nichols, Akasha Palou‐Torres, Rachel Phelan, Debra Schmidt, Ke Yan, Jennifer A Hoag
Rok vydání: 2022
Předmět:
Popis: Purpose Survivorship education and anticipatory guidance represents an unmet need for pediatric, adolescent, and young adult (AYA) cancer survivors and their caregivers when treatment ends. This pilot study evaluated the feasibility, acceptability, and preliminary efficacy of a structured transition program, bridging treatment to survivorship, to reduce distress and anxiety and increase perceived preparedness for survivors and caregivers. Methods Bridge to Next Steps is a 2-visit program, within 8 weeks of treatment completion and 7 months post-treatment, which provides survivorship education, psychosocial screening, and resources. Fifty survivors and 46 caregivers participated. Participants completed pre- and post-intervention measures: Distress Thermometer and PROMIS anxiety/emotional distress (ages ≥ 8 years), and perceived preparedness survey (ages ≥ 14 years). AYA survivors and caregivers completed a post-intervention acceptability survey. Results Most participants (92.59%) completed both visits, and most AYA survivors (57.1%) and caregivers (76.5%) endorsed the program as helpful. Caregivers’ distress and anxiety scores decreased from pre- to post-intervention (p
Databáze: OpenAIRE