Urologic self-management through intermittent self-catheterization among individuals with spina bifida: A journey to self-efficacy and autonomy
| Autor: | Jonathan Castillo, Huirong Zhu, Gene O. Huang, Heidi Castillo, Talia Collier, Ellen Fremion, Duong D. Tu, Kathryn K. Ostermaier |
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| Rok vydání: | 2017 |
| Předmět: |
inorganic chemicals
Male medicine.medical_specialty Pediatrics Activities of daily living Meningomyelocele Bathing Adolescent 030232 urology & nephrology Ethnic group Physical Therapy Sports Therapy and Rehabilitation digestive system 03 medical and health sciences 0302 clinical medicine Intellectual disability medicine Humans Intermittent Urethral Catheterization Urinary Bladder Neurogenic Child Spinal Dysraphism Self-efficacy Self-management Spina bifida business.industry Self-Management Rehabilitation Cognition medicine.disease Self Efficacy Child Preschool Pediatrics Perinatology and Child Health Personal Autonomy Physical therapy Female business 030217 neurology & neurosurgery |
| Zdroj: | Journal of pediatric rehabilitation medicine. 10(3-4) |
| ISSN: | 1875-8894 |
| Popis: | PURPOSE To describe the age of independence in intermittent self-catheterization (ISC) in a diverse patient population and identify factors associated with ISC in individuals with spina bifida. METHODS Two hundred patients with myelomeningocele or lipomyelomeningocele, who were ⩾ 3 years of age and utilized catheterization for bladder management were included. Data regarding diagnosis, functional level of lesion, race, ethnicity, presence of shunt, method of catheterization, self-management skills, fine motor skills, and cognitive abilities were collected. RESULTS Fifty-five percent of individuals were able to perform ISC with a mean age of 9.45 years (SD = 2.97) and 22.7% used a surgically created channel. Higher level of lesion and female gender were associated with a lower rate of ISC. Intellectual disability was present in 15% of the individuals able to perform ISC and in 40% of those not able to perform ISC (p= 0.0005). Existent self-efficacy regarding activities of daily living (i.e. dressing, bathing, skin care) were associated with ISC (p< 0.0001). CONCLUSIONS The average age of ISC emerged as a target for culturally-appropriate educational interventions to stimulate greater early independence. Future research on factors that may foster an 'independent spirit' early in childhood leading to self-management are warranted. |
| Databáze: | OpenAIRE |
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