Characteristics of adult patients with chronic intestinal failure due to short bowel syndrome:An international multicenter survey
| Autor: | Loris Pironi, Ezra Steiger, Francisca Joly, Palle B. Jeppesen, Geert Wanten, Anna S. Sasdelli, Cecile Chambrier, Umberto Aimasso, Manpreet S. Mundi, Kinga Szczepanek, Amelia Jukes, Miriam Theilla, Marek Kunecki, Joanne Daniels, Mireille Serlie, Florian Poullenot, Sheldon C. Cooper, Henrik H. Rasmussen, Charlene Compher, David Seguy, Adriana Crivelli, Lidia Santarpia, Francesco W. Guglielmi, Nada Rotovnik Kozjek, Stéphane M. Schneider, Lars Ellegard, Ronan Thibault, Przemysław Matras, Konrad Matysiak, Andrè Van Gossum, Alastair Forbes, Nicola Wyer, Marina Taus, Nuria M. Virgili, Margie O'Callaghan, Brooke Chapman, Emma Osland, Cristina Cuerda, Gábor Udvarhelyi, Lynn Jones, Andre D. Won Lee, Luisa Masconale, Paolo Orlandoni, Corrado Spaggiari, Marta Bueno Díez, Maryana Doitchinova-Simeonova, Aurora E. Serralde-Zúñiga, Gabriel Olveira, Zeljko Krznaric, Laszlo Czako, Gintautas Kekstas, Alejandro Sanz-Paris, Mª Estrella Petrina Jáuregui, Ana Zugasti Murillo, Eszter Schafer, Jann Arends, José P. Suárez-Llanos, Nader N. Youssef, Giorgia Brillanti, Elena Nardi, Simon Lal, Adriana N. Crivelli, Hector Solar Muñiz, Brooke R. Chapman, Ruth Hodgson, Siobhan Wallin, Kay Lasenby, Andre Van Gossum, Andre Dong Won Lee, Henrik Højgaard Rasmussen, Chrisoffer Brandt, Vanessa Boehm, Julie Bataille, Lore Billiauws, Tomas Molnar, Mihaly Zsilak-Urban, Ferenc Izbéki, Peter Sahin, Anna Simona Sasdelli, Merlo F. Dario, Valentino Bertasi, Nunzia Regano, Santarpia Lidia, Lucia Alfonsi, Debora Busni, Lyn Gillanders, Anna Zmarzly, Marta Bueno, Carmen Garde, Ma Estrella Petrina Jáuregui, Cora Jonker, Simona Di Caro, Niamh Keane, Pinal Patel, Sarah-Jane Nelson Hughes, Rachel Lloyd, Arun Abraham, Gerda Garside, Michael Taylor, Jian Wu, Trevor Smith, Charlotte Pither, Michael Stroud, Reena Parmar, Nicola Burch, Sarah Zeraschi, Manpreet Mundi, Denise Jezerski |
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| Přispěvatelé: | Pironi L., Steiger E., Joly F., Jeppesen P.B., Wanten G., Sasdelli A.S., Chambrier C., Aimasso U., Mundi M.M., Szczepanek K., Jukes A., Theilla M., Kunecki M., Daniels J., Serlie M., Poullenot F., Cooper S.C., Rasmussen H.H., Compher C., Seguy D., Crivelli A., Santarpia L., Guglielmi F.W., Kozjek N.R., Schneider S.M., Ellegard L., Thibault R., Matras P., Matysiak K., Van Gossum A., Forbes A., Wyer N., Taus M., Virgili N.M., O'Callaghan M., Chapman B., Osland E., Cuerda C., Udvarhelyi G., Jones L., Won Lee A.D., Masconale L., Orlandoni P., Spaggiari C., Diez M.B., Doitchinova-Simeonova M., Serralde-Zuniga A.E., Olveira G., Krznaric Z., Czako L., Kekstas G., Sanz-Paris A., Jauregui M.E.P., Murillo A.Z., Schafer E., Arends J., Suarez-Llanos J.P., Youssef N.N., Brillanti G., Nardi E., Lal S., Crivelli A.N., Muniz H.S., Chapman B.R., Hodgson R., Wallin S., Lasenby K., Brandt C., Boehm V., Bataille J., Billiauws L., Molnar T., Zsilak-Urban M., Izbeki F., Sahin P., Dario M.F., Bertasi V., Regano N., Lidia S., Alfonsi L., Busni D., Gillanders L., Zmarzly A., Bueno M., Garde C., Jonker C., Di Caro S., Keane N., Patel P., Nelson Hughes S.-J., Lloyd R., Abraham A., Garside G., Taylor M., Wu J., Smith T., Pither C., Stroud M., Parmar R., Burch N., Zeraschi S., Mundi M., Jezerski D., Endocrinology, AGEM - Amsterdam Gastroenterology Endocrinology Metabolism, University of Bologna, Nutrition, Métabolismes et Cancer (NuMeCan), Université de Rennes 1 (UR1), Université de Rennes (UNIV-RENNES)-Université de Rennes (UNIV-RENNES)-Institut National de la Santé et de la Recherche Médicale (INSERM)-Institut National de Recherche pour l’Agriculture, l’Alimentation et l’Environnement (INRAE), Cleveland Clinic, Service de Gastroentérologie [Hôpital Beaujon], Hôpital Beaujon [AP-HP], Assistance publique - Hôpitaux de Paris (AP-HP) (AP-HP)-Assistance publique - Hôpitaux de Paris (AP-HP) (AP-HP), Rigshospitalet [Copenhagen], Copenhagen University Hospital, Radboud University Medical Center [Nijmegen], Hospices Civils de Lyon (HCL), Città della Salute e della Scienza University-Hospital, Mayo Clinic and Mayo College of Medicine, Rochester, Stanley Dudrick's Memorial Hospital, Partenaires INRAE, University Hospital of Wales, Tel Aviv University [Tel Aviv], University of Lódź, Nottingham University Hospitals NHS Trust [UK], VU University Medical Center [Amsterdam], CHU Bordeaux [Bordeaux], University Hospitals Birmingham NHS Foundation Trust, Aalborg University Hospital, Hospital of the University of Pennsylvania (HUP), Perelman School of Medicine, University of Pennsylvania [Philadelphia]-University of Pennsylvania [Philadelphia], Centre Hospitalier Régional Universitaire [Lille] (CHRU Lille), Hospital Universitario Fundacion Favaloro, University of Naples Federico II, Monsignor di Miccoli Hospital, Institute of Oncology - Ljubljana, Institute of Oncology Ljubljana, Centre Hospitalier Universitaire de Nice (CHU Nice), University of Gothenburg (GU), The project of the ESPEN database for Chronic Intestinal Failure was promoted by the ESPEN Executive Committee in 2013, was approved by the ESPEN Council and was supported by an ESPEN grant., University of Bologna/Università di Bologna, Université de Rennes (UR)-Institut National de la Santé et de la Recherche Médicale (INSERM)-Institut National de Recherche pour l’Agriculture, l’Alimentation et l’Environnement (INRAE), University Hospital of Wales (UHW), Tel Aviv University (TAU), Nottingham University Hospitals NHS Trust (NUH), University of Pennsylvania-University of Pennsylvania, University of Naples Federico II = Università degli studi di Napoli Federico II, Institute of Oncology [Ljubljana] |
| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
Parenteral Nutrition
Epidemiology [SDV]Life Sciences [q-bio] Endocrinology Diabetes and Metabolism medicine.medical_treatment MESH: Intestinal Diseases Malalties intestinals 0302 clinical medicine Indicadors de salut Medicine 030212 general & internal medicine Intestines--Diseases Nutrition and Dietetics Intestinal Disease Short bowel syndrome Intestinal failure Health status indicators 3. Good health Chronic intestinal failure Intestine Intestines medicine.anatomical_structure Cohort 030211 gastroenterology & hepatology Female MESH: Intestines Human Adult Short Bowel Syndrome medicine.medical_specialty Anastomosis 03 medical and health sciences Ileocecal valve MESH: Cross-Sectional Studies epidemiology home parenteral nutrition intestinal failure intravenous supplementation short bowel syndrome Internal medicine MESH: Short Bowel Syndrome Humans Cross-Sectional Studie Home parenteral nutrition MESH: Humans business.industry MESH: Adult medicine.disease Intravenous supplementation Intestinal Diseases lnfectious Diseases and Global Health Radboud Institute for Health Sciences [Radboudumc 4] Parenteral nutrition Cross-Sectional Studies Jejunostomy business MESH: Female MESH: Parenteral Nutrition |
| Zdroj: | Pironi, L, Steiger, E, Joly, F, Jeppesen, P B, Wanten, G, Sasdelli, A S, Chambrier, C, Aimasso, U, Mundi, M M, Szczepanek, K, Jukes, A, Theilla, M, Kunecki, M, Daniels, J, Serlie, M, Poullenot, F, Cooper, S C, Rasmussen, H H, Compher, C, Seguy, D, Crivelli, A, Santarpia, L, Guglielmi, F W, Kozjek, N R, Schneider, S M, Ellegard, L, Thibault, R, Matras, P, Matysiak, K, Van Gossum, A, Forbes, A, Wyer, N, Taus, M, Virgili, N M, O'Callaghan, M, Chapman, B, Osland, E, Cuerda, C, Udvarhelyi, G, Jones, L, Won Lee, A D, Masconale, L, Orlandoni, P, Spaggiari, C, Díez, M B, Doitchinova-Simeonova, M, Serralde-Zúñiga, A E, Olveira, G, Krznaric, Z, Czako, L, Kekstas, G, Sanz-Paris, A, Jauregui, M E P, Murillo, A Z, Schafer, E, Arends, J, Suárez-Llanos, J P, Youssef, N N, Brillanti, G, Nardi, E, Lal, S, The Home Artificial Nutrition and Chronic Intestinal Failure Special Interest Group of ESPEN & The European Society for Clinical Nutrition and Metabolism 2021, ' Characteristics of adult patients with chronic intestinal failure due to short bowel syndrome : An international multicenter survey ', Clinical Nutrition ESPEN, vol. 45, pp. 433-441 . https://doi.org/10.1016/j.clnesp.2021.07.004 Dipòsit Digital de la UB Universidad de Barcelona Clinical nutrition ESPEN. Elsevier Limited Clinical Nutrition ESPEN Clinical Nutrition ESPEN, ESPEN/Elsevier, 2021, 45, pp.433-441. ⟨10.1016/j.clnesp.2021.07.004⟩ Clinical nutrition ESPEN, 45, 433-441 Clinical Nutrition ESPEN, 2021, 45, pp.433-441. ⟨10.1016/j.clnesp.2021.07.004⟩ Clinical nutrition ESPEN, 45, pp. 433-441 |
| ISSN: | 2405-4577 |
| Popis: | Contains fulltext : 244566.pdf (Publisher’s version ) (Closed access) BACKGROUND AND AIMS: The case-mix of patients with intestinal failure due to short bowel syndrome (SBS-IF) can differ among centres and may also be affected by the timeframe of data collection. Therefore, the ESPEN international multicenter cross-sectional survey was analyzed to compare the characteristics of SBS-IF cohorts collected within the same timeframe in different countries. METHODS: The study included 1880 adult SBS-IF patients collected in 2015 by 65 centres from 22 countries. The demographic, nutritional, SBS type (end jejunostomy, SBS-J; jejuno-colic anastomosis, SBS-JC; jejunoileal anastomosis with an intact colon and ileocecal valve, SBS-JIC), underlying disease and intravenous supplementation (IVS) characteristics were analyzed. IVS was classified as fluid and electrolyte alone (FE) or parenteral nutrition admixture (PN). The mean daily IVS volume, calculated on a weekly basis, was categorized as 3 L/day. RESULTS: In the entire group: 60.7% were females and SBS-J comprised 60% of cases, while mesenteric ischaemia (MI) and Crohn' disease (CD) were the main underlying diseases. IVS dependency was longer than 3 years in around 50% of cases; IVS was infused ≥5 days/week in 75% and FE in 10% of cases. Within the SBS-IF cohort: CD was twice and thrice more frequent in SBS-J than SBS-JC and SBS-JIC, respectively, while MI was more frequent in SBS-JC and SBS-JIC. Within countries: SBS-J represented 75% or more of patients in UK and Denmark and 50-60% in the other countries, except Poland where SBS-JC prevailed. CD was the main underlying disease in UK, USA, Denmark and The Netherlands, while MI prevailed in France, Italy and Poland. CONCLUSIONS: SBS-IF type is primarily determined by the underlying disease, with significant variation between countries. These novel data will be useful for planning and managing both clinical activity and research studies on SBS. |
| Databáze: | OpenAIRE |
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