Culturally and linguistically diverse palliative care patients’ journeys at the end-of-life
| Autor: | Marguerite Green, Natalia Jerzmanowska, Safrina Thristiawati, Anna Green, Elizabeth A Lobb |
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| Rok vydání: | 2018 |
| Předmět: |
Service (business)
medicine.medical_specialty Palliative care business.industry Medical record General Medicine Decreased mobility computer.software_genre 03 medical and health sciences Psychiatry and Mental health Clinical Psychology 0302 clinical medicine Feeding force 030220 oncology & carcinogenesis Family medicine Cohort medicine Oncology & Carcinogenesis business computer Psychosocial General Nursing Interpreter |
| Zdroj: | Palliative and Supportive Care. 17:227-233 |
| ISSN: | 1478-9523 1478-9515 |
| DOI: | 10.1017/s1478951518000147 |
| Popis: | ObjectiveTo understand the clinical and psychosocial journey of culturally and linguistically diverse (CALD) palliative care patients.MethodThis study was conducted at a subacute hospital with a specialist palliative care unit and a community palliative care service in a metropolitan region of New South Wales, Australia. Medical records of 100 deceased patients from CALD backgrounds over a 12-month period from 2014 to 2015 were recorded on a data mining tool. The cohort had transitioned to either community or inpatient palliative care services with a life-limiting illness. We used descriptive statistical analyses to identify the patients’ end-of-life journeys in the physical, psychological, spiritual, and social palliative care domains. Staff case notes were used to enrich the quantitative data.ResultThe most common symptoms burdening the patients were decreased mobility (82%), pain (76%), and poor appetite (60%). The majority of patients (87%) were diagnosed with cancer. Language was a major barrier to the assessment and management of symptoms. The vast majority of patients were born in Europe and Asia. Twenty-nine percent of the patients preferred to use English. However, among patients who required an interpreter on admission, only 9% used professional interpreters. Family distress around patients’ lack of food consumption was prominent, along with provider concern when this led to families “force feeding” patients. Only 5% of files documented patients’, and 21% of files documented families’, cultural wishes or needs. Care of the body after death was only documented in 20% of files.Significance of resultsThe increasing cohort of older people from CALD backgrounds will have significant implications for the planning and delivery of palliative care services. There is an emerging need to address the physical, psychological, spiritual, and social palliative care domains in the end-of-life journeys of patients from CALD backgrounds to ensure the provision of quality care. |
| Databáze: | OpenAIRE |
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