Perspectives on team communication challenges in caring for children with medical complexity
| Autor: | Leah Bartlett, Clara Moore, Julia Orkin, Madison Beatty, Eyal Cohen, Jennifer Stinson, Erin Culbert, Sherri Adams, Arti D. Desai |
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| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
Parents
medicine.medical_specialty Universal health record Family centered care Collaborative Care Health informatics Health administration 03 medical and health sciences 0302 clinical medicine 030225 pediatrics Medicine Humans Communication solutions 030212 general & internal medicine Child Qualitative Research Shared decision making Medical education business.industry Health Policy Public health Nursing research Communication lcsh:Public aspects of medicine Communication challenges lcsh:RA1-1270 Hospitals Thematic analysis Children with medical complexity business Qualitative research Research Article |
| Zdroj: | BMC Health Services Research, Vol 21, Iss 1, Pp 1-14 (2021) BMC Health Services Research |
| ISSN: | 1472-6963 |
| Popis: | BackgroundChildren with medical complexity (CMC) require the expertise of many care providers spanning different disciplines, institutions, and settings of care. This leads to duplicate health records, breakdowns in communication, and limited opportunities to provide comprehensive, collaborative care. The objectives of this study were to explore communication challenges and solutions/recommendations from multiple perspectives including (i) parents, (ii) HCPs – hospital and community providers, and (iii) teachers of CMC with a goal of informing patient care.MethodsThis qualitative study utilized an interpretive description methodology. In-depth semi-structured interviews were conducted with parents and care team members of CMC. The interview guides targeted questions surrounding communication, coordination, access to information and roles in the health system. Interviews were conducted until thematic saturation was reached. Interviews were audio-recorded, transcribed verbatim, and coded and analyzed using thematic analysis.ResultsThirty-two individual interviews were conducted involving parents (n = 16) and care team members (n = 16). Interviews revealed 2 main themes and several associated subthemes (in parentheses): (1) Communication challenges in the care of CMC (organizational policy and technology systems barriers, inadequate access to health information, and lack of partnership in care) (2) Communication solutions (shared systems that can be accessed in real-time, universal access to health information, and partnered contribution to care).ConclusionParents, HCPs, and teachers face multiple barriers to communication and information accessibility in their efforts to care for CMC. Parents and care providers in this study suggested potential strategies to improve communication including facilitating communication in real-time, universal access to health information and meaningful partnerships. |
| Databáze: | OpenAIRE |
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