Opening Brazilian COVID-19 patient data to support world research on pandemics

Autor: Mello, Luiz E., Suman, Andrea, Medeiros, Claudia Bauzer, Prado, Claudio Almeida, Rizzatti, Edgar Gil, Nunes, Fatima L. S., Barnabé, Gabriela F., Ferreira, João Eduardo, Sá, José, Reis, Luiz F. L., Rizzo, Luiz Vicente, Sarno, Luzia, de Lamonica, Raphael, Maciel, Rui Monteiro de Barros, Cesar-Jr, Roberto Marcondes, Carvalho, Rodrigo
Jazyk: angličtina
Rok vydání: 2020
Předmět:
DOI: 10.5281/zenodo.3966427
Popis: This paper describes the COVID-19 DataSharing/BR initiative, a pioneer public-private partnership to publish open data on Brazilian COVID-19 patients. Constructed in record time, it has been launched with clinical, laboratory and diagnostic data from approximately 177,000 Brazilian individuals, in answer to researchers’ demand for quality data. COVID-19 DataSharing/BR was created by a consortium led by FAPESP (Sao Paulo Research Foundation) and USP (University of Sao Paulo, Brazil), with participation from three major private health institutions in Brazil – Fleury Institute, Sírio-Libanês Hospital and Albert Einstein Hospital. Launched on July 1st, 2020, within 10 days it had already been subject to 800 downloads from 14 different countries.This text provides a brief description of the initiative, and initial efforts for preprocessing and publishing the data according to legal and interoperability constraints. The COVID-19 DataSharing/BR repository took only one month from inception to delivery, thanks to the support of a pre-existing extensible open research data e-infrastructure.
Databáze: OpenAIRE