Feasibility and Acceptability of a mHealth Self-Management Intervention for Pediatric Transplant Families
| Autor: | Rachel Unteutsch, Alisha Mavis, Katie Neighbors, Mary K. Riordan, Rachel F. Schiffman, Melodee Nugent Liegl, Gail Stendahl, Barbara Medoff-Cooper, Estella M. Alonso, Kyle Jensen, Melissa C. Semp, Caitlin G. Peterson, Riddhiman Adib, Shelley Chapman, Rosemary C. White-Traut, Truc Vo, Pippa Simpson, Stacee M. Lerret, Sheikh Iqbal Ahamed |
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| Rok vydání: | 2021 |
| Předmět: |
medicine.medical_specialty
Self-management Pediatric transplant business.industry Self-Management Aftercare Patient Discharge Telemedicine Transplantation Intervention (counseling) Quality of Life Hospital discharge Feasibility Studies Humans Medicine Child business Solid organ transplantation Intensive care medicine mHealth General Nursing |
| Zdroj: | Western Journal of Nursing Research. 44:955-965 |
| ISSN: | 1552-8456 0193-9459 |
| DOI: | 10.1177/01939459211024656 |
| Popis: | Families of pediatric solid organ transplant recipients need ongoing education and support in the first 30 days following hospital discharge for the transplantation. The purpose of this report is to describe the feasibility, acceptability, and preliminary efficacy of a mHealth family-self management intervention, ( myFAMI), designed to improve post-discharge outcomes of coping, family quality of life, self-efficacy, family self-management, and utilization of health care resources. We enrolled 46 primary family members. myFAMI was feasible and acceptable; 81% (n=17/21) of family members completed the app at least 24/30 days (goal 80% completion rate). Family members generated 134 trigger alerts and received a nurse response within the goal timeframe of < 2 h 99% of the time. Although there were no significant differences between groups, primary outcomes were in the expected direction. The intervention was well received and is feasible for future post-discharge interventions for families of children who receive an organ transplant. |
| Databáze: | OpenAIRE |
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