Understanding barriers and outcomes of unspecified (non-directed altruistic) kidney donation from both professional’s and patient’s perspectives: research protocol for a national multicentre mixed-methods prospective cohort study
| Autor: | Lisa Burnapp, Paul J. Gibbs, Heather Draper, Rebecca Gare, Lynsey Williams, Annie Mitchell, Paul McCrone, Nizam Mamode, Joseph Chilcot, Hannah Maple, Sam Norton, Petrut Gogalniceanu, Alexis Clarke |
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| Rok vydání: | 2017 |
| Předmět: |
Research design
kidney medicine.medical_specialty Attitude of Health Personnel media_common.quotation_subject 030230 surgery Altruism 03 medical and health sciences 0302 clinical medicine Quality of life (healthcare) chronic renal failure Surveys and Questionnaires altruistic/unspecified donation Living Donors Protocol medicine Humans Prospective Studies 030212 general & internal medicine Prospective cohort study Qualitative Research Kidney transplantation media_common Motivation business.industry General Medicine Focus Groups renal transplantation medicine.disease Kidney Transplantation Focus group United Kingdom Research Design Family medicine Donation Quality of Life Tissue and Organ Harvesting Surgery business Qualitative research |
| Zdroj: | BMJ Open |
| ISSN: | 2044-6055 |
| DOI: | 10.1136/bmjopen-2017-015971 |
| Popis: | IntroductionLiving donation accounts for over one-third of all kidney transplants taking place in the UK.1The concept of anonymously donating a kidney to a stranger (non-directed altruistic or unspecified kidney donation (UKD)) remains uncomfortable for some clinicians, principally due to concerns about the motivations and long-term physical and psychological outcomes in this donor group.AimsThe research programme aims to provide a comprehensive assessment of the unspecified donor programme in the UK. It aims to identify reasons for variations in practice across centres, explore outcomes for donors and ascertain barriers and facilitators to UKD, as well as assess the economic implications of unspecified donation.MethodsThe research programme will adopt a mixed-methods approach to assessing UKD nationally using focus groups, interviews and questionnaires. Two study populations will be investigated. The first will include transplant professionals involved in unspecified kidney donation. The second will include a 5-year prospective cohort of individuals who present to any of the 23 UK transplant centres as a potential unspecified living kidney donor. Physical and psychological outcomes will be followed up to 1 year following donation or withdrawal from the donation process. A matched sample of specified donors (those donating to someone they know) will be recruited as a control group. Further qualitative work consisting of interviews will be performed on a purposive sample of unspecified donors from both groups (those who do and do not donate).DisseminationThe findings will be reported to NHS Blood and Transplant and the British Transplant Society with a view to developing national guidelines and a protocol for the management of those presenting for unspecified donation.Trial registration numberISRCTN23895878, Pre-results. |
| Databáze: | OpenAIRE |
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