Parents' experiences of caring for a young child with type 1 diabetes: a systematic review and synthesis of qualitative evidence
| Autor: | Charlotte K. Boughton, Roman Hovorka, Julia Lawton, David W. H. Rankin, Barbara Kimbell |
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| Přispěvatelé: | Kimbell, B [0000-0003-4510-9862], Apollo - University of Cambridge Repository, Kimbell, B. [0000-0003-4510-9862] |
| Rok vydání: | 2021 |
| Předmět: |
Parents
media_common.quotation_subject Health Personnel MEDLINE 030209 endocrinology & metabolism PsycINFO CINAHL Affect (psychology) 03 medical and health sciences 0302 clinical medicine Nursing Diabetes management medicine Humans 030212 general & internal medicine Child Qualitative Research media_common business.industry lcsh:RJ1-570 lcsh:Pediatrics Type 1 diabetes Diabetes Mellitus Type 1 Nutrition diet physical health and endocrinology Pediatrics Perinatology and Child Health Qualitative synthesis Anxiety Family Relations Worry medicine.symptom business Research Article Qualitative research |
| Zdroj: | BMC Pediatrics, Vol 21, Iss 1, Pp 1-13 (2021) Kimbell, B, Lawton, J, Boughton, C K, Hovorka, R & Rankin, D 2021, ' "Parents’ experiences of caring for a young child with type 1 diabetes : A systematic review and synthesis of qualitative evidence ', BMC Pediatrics, vol. 21, 160 . https://doi.org/10.1186/s12887-021-02569-4 BMC Pediatrics |
| DOI: | 10.1186/s12887-021-02569-4 |
| Popis: | Aims To synthesise the qualitative evidence on parents’ experiences of caring for a child aged ≤8 years with type 1 diabetes to identify: the challenges they encounter; their views about support received; ways in which support could be improved; and, directions for future research. Methods We searched Medline, EMBASE, CINAHL, PsycINFO and Web of Science databases to identify qualitative studies reporting parents’ views and experiences of caring for a child with type 1 diabetes aged ≤8 years. Key analytical themes were identified using thematic synthesis. Results Fourteen studies were included. The synthesis resulted in the generation of two overarching themes. Monopolisation of life describes the all-encompassing impact diabetes could have on parents due to the constant worry they experienced and the perceived need for vigilance. It describes how parents’ caring responsibilities could affect their wellbeing, relationships and finances, and how a lack of trusted sources of childcare and a desire to enable a ‘normal’ childhood constrained personal choices and activities. However, use of diabetes technologies could lessen some of these burdens. Experiences of professional and informal support describes how encounters with healthcare professionals, while generally perceived as helpful, could lead to frustration and anxiety, and how connecting with other parents caring for a child with type 1 diabetes provided valued emotional and practical support. Conclusions This synthesis outlines the challenges parents encounter, their views about support received and ways in which support might be improved. It also highlights significant limitations in the current literature and points to important areas for future research, including how sociodemographic factors and use of newer diabetes technologies influence parents’ diabetes management practices and experiences. PROSPERO: https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42019128710 |
| Databáze: | OpenAIRE |
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