Developing a patient portal for haematology patients requires involvement of all stakeholders and a customised design, tailored to the individual needs

Autor: Tobias A. Wienhold, Gerard M. J. Bos, Paul A. F. Geerts, Celine Almekinders, Lise E. F. Janssen, Trudy van der Weijden, Pien G. M. Loeffen
Přispěvatelé: MUMC+: MA Hematologie (9), MUMC+: MA Med Staf Artsass Interne Geneeskunde (9), Family Medicine, RS: CAPHRI - R6 - Promoting Health & Personalised Care, Interne Geneeskunde, RS: GROW - R3 - Innovative Cancer Diagnostics & Therapy
Rok vydání: 2019
Předmět:
Adult
Male
Telemedicine
020205 medical informatics
Attitude of Health Personnel
Health Informatics
02 engineering and technology
DECISION-MAKING
lcsh:Computer applications to medicine. Medical informatics
Medical Oncology
Health informatics
CANCER SURVIVORS
03 medical and health sciences
Haematologic neoplasms
0302 clinical medicine
Patient Portals
Stakeholder Participation
Neoplasms
Physicians
0202 electrical engineering
electronic engineering
information engineering
Added value
Humans
Medicine
Outpatient clinic
Relevance (information retrieval)
030212 general & internal medicine
Aged
business.industry
Health Policy
Medical record
Patient portal
Hematology
Middle Aged
Patient Acceptance of Health Care
medicine.disease
Focus group
Computer Science Applications
MEDICAL-RECORDS
lcsh:R858-859.7
Female
Medical emergency
ACCESS
business
Haematology
Research Article
Zdroj: BMC Medical Informatics and Decision Making
BMC Medical Informatics and Decision Making, Vol 19, Iss 1, Pp 1-10 (2019)
BMC Medical Informatics and Decision Making, 19:129. BioMed Central Ltd
ISSN: 1472-6947
DOI: 10.1186/s12911-019-0868-y
Popis: Background Electronic patient portals are increasingly being implemented, also in (haemato) oncology. However, portal usage is low and depends on user and provider engagement. We explored wishes, expectations and thoughts of patients with a haematologic malignancy and their physicians with regard to the electronic patient portal. Methods Based on insights from literature and a focus group discussion we built a 44-item questionnaire. This questionnaire was spread amongst patients with a haematologic malignancy at the outpatient clinic that was not yet exposed to patient portal facilities. Haematologists completed a questionnaire based on literature. Results Patients were interested in many different types of access to information and portal functionalities. However, their opinions varied about the provision of access to the portal to other people, the role of the physician, possibilities for communication via the portal and timing of access. The physicians acknowledged the relevance of the electronic patient portal, but had some worries about the patients’ autonomous information handling, organizational and technical issues. Patients frequently expressed to be open about the potential of the patient portal to orchestrate their care. Nevertheless, most physicians appreciated their supporting role towards the patient. Conclusions Patients and physicians appreciated the electronic patient portal. Both groups need to be involved in further portal development to improve engagement by meeting patients’ wishes, taking into account organizational and professional issues and managing expectations for both parties. To fit various patient profiles, portal design should be flexible and individualized. Further research should focus on the perceived added value and the impact on patient related outcome measures of portals. Electronic supplementary material The online version of this article (10.1186/s12911-019-0868-y) contains supplementary material, which is available to authorized users.
Databáze: OpenAIRE
Externí odkaz: