Young Adult Experience in an Outpatient Interdisciplinary Palliative Care Cancer Clinic
| Autor: | Abha A. Gupta, Caroline M Rodrigues, Camilla Zimmermann, Yan Castaldo, Jonathan Avery, Mahsa Samadi, Ahmed Al-Awamer, Alisha Kassam, Amirrtha Srikanthan, Pamela J Mosher, Adrian Thavaratnam, Rachel Aubrey, Norma Mammone D'Agostino |
|---|---|
| Rok vydání: | 2020 |
| Předmět: |
medicine.medical_specialty
Palliative care Oncology (nursing) business.industry Health Policy Palliative Care MEDLINE Advanced cancer 03 medical and health sciences Young Adult 0302 clinical medicine Oncology 030220 oncology & carcinogenesis Family medicine Neoplasms Adaptation Psychological Outpatients Medicine Humans Palliative care cancer Family 030212 general & internal medicine Young adult business |
| Zdroj: | JCO oncology practice. 16(12) |
| ISSN: | 2688-1535 |
| Popis: | PURPOSE: Young adults (YAs; defined as 18-39 years of age) with advanced cancer are a group for whom standardized age-appropriate palliative care has not been established. The purpose of this study was to explore the YA experience and perceptions of palliative care in an outpatient interdisciplinary palliative care clinic for this population. PATIENTS AND METHODS: Using an interpretive descriptive design, semistructured interviews were conducted with 12 YAs with advanced cancer who were being seen jointly by a palliative care physician and psychiatrist in an ambulatory palliative care clinic. Interviews explored participants’ understanding and experiences of receiving palliative care. Six family members were also interviewed to build on the YA experience. Data collection and analysis occurred concurrently, drawing on the constructivist grounded theory method to analyze the data. RESULTS: Participants described being referred to and seen in the interdisciplinary palliative care clinic as a conflicting and at times difficult experience because of the feeling of being categorized as palliative as YAs. Even so, there were key aspects associated with the specific palliative care approach that allowed YAs to cope with this new label, leading to a beneficial experience, specifically: provided YAs with time and space to explore the experience of having cancer at a younger age, created repeat opportunities to talk openly with people who “got it,” and highlighted the importance of including family support in the care of YAs. CONCLUSION: YAs who were referred to the interdisciplinary palliative care clinic struggled with the category of palliative care but also found the care they received beneficial. Findings provide an approach to palliative care tailored to YAs with advanced cancer. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|