Children with ill parents: extent and nature of caring activities
Autor: | Ketil Hanssen-Bauer, Anne Faugli, Betty Van Roy, Bente M. Weimand, Ellen Katrine Kallander, Elin Kufås, Saul Becker, Torleif Ruud, Kristin Stavnes |
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Rok vydání: | 2017 |
Předmět: |
Adult
Male Parents medicine.medical_specialty Coping (psychology) Adolescent Cross-sectional study 03 medical and health sciences 0302 clinical medicine Child of Impaired Parents Social skills Adaptation Psychological Health care Humans Medicine 0501 psychology and cognitive sciences 030212 general & internal medicine Parent-Child Relations Child Psychiatry Personal care Norway business.industry Mental Disorders 05 social sciences Public Health Environmental and Occupational Health Mental illness medicine.disease Substance abuse Cross-Sectional Studies Locus of control Caregivers Female business 050104 developmental & child psychology |
Zdroj: | Scandinavian Journal of Caring Sciences. 32:793-804 |
ISSN: | 0283-9318 |
Popis: | Rationale Previous studies have shown that children may take on higher extents of caring activities if their parents are affected by severe illness or disability, especially when their parents lack access to formal and informal care. Aims and objectives This study examined the extent and nature of caring activities done by patients’ children; differences in caring activities between different types of parental illness; factors associated with caring activities. Design An explorative cross-sectional multicentre study. Methods Parents as patients in specialised healthcare services, and their children, were recruited from five health trusts in Norway. The sample included 246 children aged 8–17 years and their 238 parents with severe physical illness (neurological disease or cancer) (n = 135), mental illness (n = 75) or substance abuse (n = 28). Main outcome measure Multidimensional Assessment of Caring Activities (MACA-YC18). Results A large number of children with ill parents are performing various caring activities. Increased caring activities among children due to their parent's illness were confirmed by their parents, especially with regard to personal care. We found no significant differences in the extent of caring activities between illness types, but there were some differences in the nature of these activities. Factors significantly associated with the extent and nature of caring activities were as follows: better social skills and higher external locus of control among the children; and poorer physical parental health. Parent's access to home-based services was limited. Study limitations In recruitment of participants for the study, a sampling bias may have occurred. Conclusion To promote coping and to prevent inappropriate or extensive caring activities among children with ill parents, there is a need for increased access to flexible home-based services adapted to the type of parental illness. |
Databáze: | OpenAIRE |
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