Risk knowledge in relapsing multiple sclerosis (RIKNO 1.0) - Development of an outcome instrument for educational interventions

Autor: Liina Vahter, Anne Christin Rahn, Korbinian Fischer, Christoph Heesen, A. Van Nunen, Jelena Drulovic, AutoMS-group, G. Fulcher, Imke Backhus, Sascha Köpke, Katrin Liethmann, Andrea Giordano, Alessandra Solari, Y. Beckmann, Jürgen Kasper, Jana Poettgen
Jazyk: angličtina
Rok vydání: 2015
Předmět:
Adult
Male
Risk
medicine.medical_specialty
Item bank
lcsh:Medicine
Pilot Projects
Disease
VDP::Medisinske Fag: 700::Klinisk medisinske fag: 750::Nevrologi: 752
law.invention
Young Adult
03 medical and health sciences
Multiple Sclerosis
Relapsing-Remitting
0302 clinical medicine
Patient Education as Topic
Randomized controlled trial
law
Surveys and Questionnaires
Intervention (counseling)
Outcome Assessment
Health Care
Humans
Medicine
030212 general & internal medicine
Young adult
lcsh:Science
Aged
Multidisciplinary
business.industry
lcsh:R
Absolute risk reduction
Evidence-based medicine
Middle Aged
3. Good health
VDP::Medical disciplines: 700::Clinical medical disciplines: 750::Neurology: 752
Physical therapy
Female
lcsh:Q
business
030217 neurology & neurosurgery
Research Article
Patient education
Zdroj: PLoS ONE, Vol 10, Iss 10, p e0138364 (2015)
PLoS ONE
Popis: Background Adequate risk knowledge of patients is a prerequisite for shared decision making but few attempts have been made to develop assessment tools. Multiple Sclerosis (MS) is a chronic inflammatory disease of young adults with an increasing number of partially effective immunotherapies and therefore a paradigmatic disease to study patient involvement. Objective/methods Based on an item bank of MS risk knowledge items and patient feedback including perceived relevance we developed a risk knowledge questionnaire for relapsing remitting (RR) MS (RIKNO 1.0) which was a primary outcome measure in a patient education trial (192 early RRMS patients). Results Fourteen of the RIKNO 1.0 multiple-choice items were selected based on patient perceived relevance and item difficulty indices, and five on expert opinion. Mean item difficulty was 0.58, ranging from 0.14 to 0.79. Mean RIKNO 1.0 score increased after the educational intervention from 10.6 to 12.4 (p = 0.0003). Selected items were particularly difficult (e.g. those on absolute risk reductions of having a second relapse) and were answered correctly in only 30% of the patients, even after the intervention. Conclusion Despite its high difficulty, RIKNO 1.0 is a responsive instrument to assess risk knowledge in RRMS patients participating in educational interventions.
Databáze: OpenAIRE
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