Out-of-pocket expenditures and care time for children with Down Syndrome: A single-hospital study in Mexico City

Autor: Verónica Fabiola Morán-Barroso, Constanza García-Delgado, Filiberto Toledano-Toledano, Ma. Vanessa Aldaz-Rodríguez, Juan Garduño-Espinosa, Silvia Martínez-Valverde, Víctor Granados-García, Ma. Teresa Tiro-Sánchez, Guillermo Salinas-Escudero
Jazyk: angličtina
Rok vydání: 2019
Předmět:
Male
Mexican People
Time Factors
Economics
Social Sciences
Medical care
Pediatrics
Decile
Families
Chromosomal Disorders
Sociology
Mexico city
Medicine and Health Sciences
Medicine
Ethnicities
Public and Occupational Health
Human Families
Child
Children
0303 health sciences
Family Characteristics
Multidisciplinary
030305 genetics & heredity
Socioeconomic Aspects of Health
Hospitals
Medical services
Child
Preschool

Regression Analysis
Female
0305 other medical science
Research Article
Down syndrome
Science
Disabilities
03 medical and health sciences
Health Economics
Humans
Catastrophic Illness
Socioeconomic status
Medical expenses
Mexico
Clinical Genetics
030505 public health
Health economics
business.industry
Infant
Newborn

Infant
Latin American people
medicine.disease
Health Care
Age Groups
People and Places
Population Groupings
Patient Care
Down Syndrome
Health Expenditures
business
Demography
Zdroj: PLoS ONE
PLoS ONE, Vol 14, Iss 1, p e0208076 (2019)
ISSN: 1932-6203
Popis: AimTo examine the burden of out-of-pocket household expenditures and time spent on care by families responsible for children with Down Syndrome (DS).MethodsA cross-sectional analysis was performed after surveying families of children with DS. The children all received medical care at the Hospital Infantil de México Federico Gomez (HIMFG), a National Institute of Health. Data were collected on out-of-pocket household expenditures for the medical care of these children. The percentage of such expenditure was calculated in relation to available household expenditure (after subtracting the cost of food/housing), and the percentage of households with catastrophic expenditure. Finally, the time spent on the care of the child was assessed.ResultsThe socioeconomic analysis showed that 67% of the households with children with DS who received medical care in the HIMFG were within the lower four deciles (I-IV) of expenses, indicating a limited ability to pay for medical services. Yearly out-of-pocket expenditures for a child with DS represented 27% of the available household expenditure, which is equivalent to $464 for the United States dollars (USD). On average, 33% of families with DS children had catastrophic expenses, and 46% of the families had to borrow money to pay for medical expenses. The percentage of catastrophic expenditure was greater for a household with children aged five or older compared with households with younger children. The regression analysis revealed that the age of the child is the most significant factor determining the time spent on care.ConclusionsSome Mexican families of children with DS incur substantial out-of-pocket expenditures, which constitute an economic burden for families of children who received medical care at the HIMFG.
Databáze: OpenAIRE