Haemophilia Registry of the Medical Committee of the Swiss Haemophilia Society

Autor:	N. von der Weid
Rok vydání:	2013
Předmět:	medicine.medical_specialty Pediatrics business.industry Haemophilia A Factor level Hematology medicine.disease Haemophilia Disease severity Treatment modality hemic and lymphatic diseases Epidemiology medicine Von Willebrand disease business
Zdroj:	Hämostaseologie. 33:S10-S14
ISSN:	2567-5761 0720-9355
DOI:	10.1055/s-0037-1619794
Popis:	SummaryThe Haemophilia Registry of the Swiss Haemophilia Society is currently more than 12 years old. We present here the data as from October 31st, 2012. Registered are patients with haemophilia A and B, von Willebrand disease with VWF : R-Co < 10% and other rare factor deficiencies. For this latter group, inclusion in the Registry depends on the clinical relevance of the bleeding disorder, not on the factor level. Data come directly from the Swiss haemophilia reference and treatment centers and should be updated once a year. Currently 967 patients are registered, the majority (587) presenting with haemophilia A. Disease severity is graded according to ISTH criteria. Basic epidemiological findings are similar to those from larger registries in Europe, Canada or the USA.More that 60% of persons with haemophilia in Switzerland are treated on-demand, with the exception of young patients (
Databáze:	OpenAIRE
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