Understanding the Experiences of Caregivers of Children With Spinal Muscular Atrophy in the Era of Disease-modifying Therapies

Autor:	L. Xiao, S. Kang, H. Gonorazky, J. Chiang, M. Ambreen, L. Weinstock, S. Haliburton, F. Syed, N. Cithiravel, T. Tran, S. Kuyntjes, E. Nigro, E. Law, D. Djordjevic, M. Mccradden, R. Amin
Rok vydání:	2023
Zdroj:	D27. IMPROVING PEDIATRIC PULMONOLOGY CARE: BEHAVIORAL AND HEALTH SERVICES RESEARCH.
DOI:	10.1164/ajrccm-conference.2023.207.1_meetingabstracts.a6429
Databáze:	OpenAIRE
Externí odkaz:	https://explore.openaire.eu/search/publication?articleId=doi_________::ce355005aba6bc63d00a03499b31d38b https://doi.org/10.1164/ajrccm-conference.2023.207.1_meetingabstracts.a6429 Zobrazit plný text záznamu