Supporting Coping with Parkinson's Disease Through Self Tracking
| Autor: | Lara M. Mangravite, Sonali R. Mishra, Larsson Omberg, Eric B. Hekler, Michael R. Kellen, John MacDuffie Woodburn, Predrag Klasnja |
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| Rok vydání: | 2019 |
| Předmět: |
Coping (psychology)
Parkinson's disease business.industry media_common.quotation_subject fungi 05 social sciences Applied psychology food and beverages Self tracking ComputerApplications_COMPUTERSINOTHERSYSTEMS 020207 software engineering 02 engineering and technology Disease medicine.disease Health informatics Personal informatics Denial Smartphone app 0202 electrical engineering electronic engineering information engineering medicine 0501 psychology and cognitive sciences business Psychology 050107 human factors media_common |
| Zdroj: | CHI |
| DOI: | 10.1145/3290605.3300337 |
| Popis: | Self-tracking can help people understand their medical condition and the factors that influence their symptoms. However, it is unclear how tracking technologies should be tailored to help people cope with the progression of a degenerative disease. To understand how smartphone apps and other tracking technologies can support people in coping with an incurable illness, we interviewed both people with Parkinson's Disease (n=17) and care partners (n=6) who help people with Parkinson's manage their lives. We describe how symptom trackers can help people identify and solve problems to improve their quality of life, the role symptom trackers can play in helping people combat their own tendencies towards avoidance and denial, and the complex role of care partners in defining and tracking ambiguous symptoms. Our findings yield insights that can guide the design of tracking technologies to help people with Parkinson's Disease accept and plan for their condition. |
| Databáze: | OpenAIRE |
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