Registres de malformations congénitales : un outil pour la surveillance, la recherche et l’évaluation des actions de santé
| Autor: | V. Vodovar, Babak Khoshnood, Marie Kassis, Nathalie Lelong, François Goffinet |
|---|---|
| Rok vydání: | 2013 |
| Předmět: |
medicine.medical_specialty
business.industry Public health Public health interventions Psychological intervention Prenatal diagnosis General Medicine medicine.disease Primary prevention medicine Epidemiological surveillance Medical emergency Baseline (configuration management) Intensive care medicine business |
| Zdroj: | Bulletin de l'Académie Nationale de Médecine. 197:329-341 |
| ISSN: | 0001-4079 |
| DOI: | 10.1016/s0001-4079(19)31588-2 |
| Popis: | This article examines the role of public health registries, based on the example of congenital abnormalities. In addition to their main role in epidemiological surveillance, registries can be useful for conducting research and for evaluating public health interventions such as primary prevention and prenatal diagnosis. Congenital abnormalities are relatively frequent, affecting about 3% of births, but many are due to rare diseases. Known teratogens increase the risk of one or afew specific, often rare anomalies. Consequently, continuous monitoring of large, geographically defined populations is needed, particularly to establish the "baseline "prevalence of birth defects. Networks of registries can make an important contribution to this goal, as exemplified by the EUROCAT network, which plays a key role in coordinating surveillance and research on birth defects in Europe. |
| Databáze: | OpenAIRE |
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