Lessons learned from a clinical-research partnership in outpatient palliative care
| Autor: | Mary J. Cunningham, Diane L Huenke, Karla T. Washington |
|---|---|
| Rok vydání: | 2016 |
| Předmět: |
Cancer Research
medicine.medical_specialty Palliative care Family caregivers business.industry law.invention 03 medical and health sciences Distress 0302 clinical medicine Quality of life (healthcare) Oncology Nursing Randomized controlled trial 030502 gerontology law 030220 oncology & carcinogenesis General partnership Intervention (counseling) Family medicine Medicine Catchment area 0305 other medical science business |
| Zdroj: | Journal of Clinical Oncology. 34:238-238 |
| ISSN: | 1527-7755 0732-183X |
| Popis: | 238 Background: Palliative care providers and investigators at the University of Missouri developed a clinical-research partnership to conduct a randomized clinical trial (R21CA191165; NCT02427490; PI: Washington) of a technologically-mediated intervention for family caregivers of cancer patients aimed at decreasing caregivers’ distress and improving their quality of life. As the first year of the project drew to a close, the clinician-research team sought to systematically examine the challenges they had encountered conducting research in the outpatient palliative care clinic, which serves a 91-county catchment area that is highly rural and underserved, and to document the strategies they had employed to address them. Methods: Researchers conducted a content analysis of all weekly meeting notes and communication (i.e., emails, memos) related to Year 1 of the project, identifying major categories of identified challenges and related solutions. Results were presented to other members of the team for verification and/or clarification of key points. Results: Researchers identified five categories of challenges and related strategies: adapting processes and materials for use earlier in the cancer trajectory, accommodating a broad range of literacy levels, reaching rural caregivers, responding to technological constraints, and integrating research into the clinic workflow. Selected strategies included consultation with a Patient Advisory Board to revise recruitment materials, broadening inclusion criteria to accommodate rural caregivers without broadband internet availability in their communities, and establishing processes to allow researchers to meet with potential participants between scheduled appointments during busy clinic days. Conclusions: There are many unique considerations clinicians and researchers should take into account when developing partnerships in outpatient palliative oncology settings, particularly within predominantly rural, publicly-funded health care systems. While challenging to develop, such partnerships are instrumental in establishing an evidence base for care for individuals who are otherwise often underrepresented in large research projects. Clinical trial information: NCT02427490. |
| Databáze: | OpenAIRE |
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