Supporting Collaboratively Constructed Independence
| Autor: | Mark W. Newman, Ayse G. Buyuktur, Pei-Yao Hung, Mark S. Ackerman |
|---|---|
| Rok vydání: | 2018 |
| Předmět: |
Computer Networks and Communications
media_common.quotation_subject medicine.medical_treatment Applied psychology 02 engineering and technology Health informatics 020204 information systems Agency (sociology) 0202 electrical engineering electronic engineering information engineering medicine 0501 psychology and cognitive sciences Set (psychology) Spinal cord injury 050107 human factors media_common Rehabilitation Self-management business.industry 05 social sciences Person with disability medicine.disease Independence Human-Computer Interaction Psychology business Social Sciences (miscellaneous) |
| Zdroj: | Proceedings of the ACM on Human-Computer Interaction. 2:1-25 |
| ISSN: | 2573-0142 |
| DOI: | 10.1145/3274295 |
| Popis: | Independence is a central concern for people in the care of many chronic conditions. It is often viewed as a goal that can be facilitated with the use of patient data. It is also viewed, especially from the medical side, as something an individual achieves. However, in the lived experience, independence is often a set of collaborative practices. In this paper, we unpack findings from an interview-based study of Spinal Cord Injury (SCI) self-care. We found that independence - both functional and in the form of effecting agency - must be co-constructed by the choices and activities of the care network, including the person with disability, caregivers, and clinicians. This collaboratively shaped independence also affects potential collection and use of data in support of self-care. We describe how collaboratively shaped independence informs requirements and constraints for the design of sensor-based networks for self-care in long-term chronic disability. |
| Databáze: | OpenAIRE |
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