| Autor: |
Swallow, V., Smith, T., Carolan, I. |
| Zdroj: |
European Journal of Paediatric Neurology; May2015 Supplement 1, Vol. 19, pS93-S93, 1p |
| Abstrakt: |
Objective To determine children and young people's (CYP) views on desirable components for a proposed interactive health communication application (IHCA) to promote personal and family management of their long-term condition/s. Methods Participants were selected using purposive sampling based on sex, age and condition type. We conducted qualitative, semi-structured interviews with 26 CYP aged 5–19 years living with a range of long-term conditions. Interviews were conducted in the family home or a quiet space in the hospital with or without parents present depending on individuals' preferences. Interviews were informed by topic guides developed respectively for 5–8, 9–12 and 13–19 year olds, and were digitally recorded, transcribed verbatim and anonymised. Data were collected and analysed iteratively using the Framework Technique. As data management proceeded, emerging themes supplemented interview topics; this helped identify new lines of enquiry to pursue during on-going data collection. Constant comparison of data opened up meaning until no new themes emerged and theoretical saturation was reached, when recruitment ceased. Results Analysis revealed three themes relating to desirable age-appropriate components for the proposed IHCA; (i) INTERACTIVE TEACHING: e.g. age-appropriate interactive games and activities that would help patients/families to learn about the condition and its management (ii) VIDEO LEARNING: videos of clinical procedure they need to perform at home to help patients/families learn to manage procedures themselves and reduce the need to “call on” staff, and (iii) SOCIAL NETWORKING: to communicate with others of the same age with similar conditions through responsibly managed sites. Conclusion This design and methodology could be used to inform development of an IHCA involving age-appropriate, condition-specific resources to support home-based management of CYP living with neurological conditions. [ABSTRACT FROM AUTHOR] |
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