Autor: |
Franke, Nike, Wouldes, Trecia Ann, Lumsden Brown, Gavin Thomas, Ward, Kim, Rogers, Jenny, Harding, Jane E. |
Předmět: |
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Zdroj: |
Archives of Disease in Childhood; Mar2024, Vol. 109 Issue 3, p209-214, 6p |
Abstrakt: |
This article presents the findings of a qualitative study that examined the perspectives of adult offspring who participated in a randomized trial during their mother's pregnancy. The study aimed to understand their views on consent, assent, and their priorities regarding health outcomes. The participants generally found the current consent procedures acceptable, highlighting the role of parents as decision-makers in pediatric research. The study emphasizes the importance of giving children a voice and involving them in the research process, as well as providing accurate information to research participants. The participants had diverse reasons for participating in the study and provided suggestions for improvement. The article acknowledges the limitations of the study and suggests ways to promote children's agency in research. [Extracted from the article] |
Databáze: |
Complementary Index |
Externí odkaz: |
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