Experiences of caregivers of patients with noncancer diseases readmitted to an emergency department at the end of life.

Autor: Amado-Tineo J; Universidad Nacional Mayor de San Marcos, Lima, Peru.; Hospital Rebagliati-EsSalud, Lima, Peru., Oscanoa-Espinoza T; Universidad Nacional Mayor de San Marcos, Lima, Peru., Loli-Ponce R; Universidad Nacional Mayor de San Marcos, Lima, Peru., Delgado-Guay MO; Department of Palliative, Rehabilitation and Integrative Medicine, Unit 1414, The University of Texas MD Anderson Cancer Center, 1515 Holcombe Boulevard, Houston, TX, 77030, USA. marvin.delgado@mdanderson.org.
Jazyk: angličtina
Zdroj: BMC palliative care [BMC Palliat Care] 2024 Nov 15; Vol. 23 (1), pp. 265. Date of Electronic Publication: 2024 Nov 15.
DOI: 10.1186/s12904-024-01596-z
Abstrakt: Background: When there is limited access to primary care or end-of-life services for patients with chronic diseases, caregivers often need to bring their loved ones to emergency departments (EDs) to solve or control distressing physical and psychosocial-spiritual problems. There is limited literature about the experiences of primary caregivers of patients with nononcologic chronic diseases who are at the end of life and are evaluated in EDs in Latin America.
Methods: We conducted in-depth interviews with primary caregivers of adult patients with advanced and terminal chronic nononcologic diseases who were evaluated in the ED of a hospital in Lima, Peru. This qualitative study employed a phenomenological approach. Themes, categories, codes, and quotes were analyzed using ATLAS.ti 9.1.4.
Results: Twelve primary caregivers, aged 38 to 76 years old, mostly female immediate family members (daughter or wife), participated. They described their experiences in the ED, including feelings of despair and anguish due to prolonged waiting times, insufficient resources, incomplete information regarding the patient's problems, and "insensitive" treatment by the staff. Some also expressed gratitude for "saving patient's lives." They also experienced deficiencies in home care follow-up and patient transfers, which worsened during the COVID-19 pandemic; many times they felt that "they were ignored." When caring for patients at home, caregivers felt sad, helpless, and frustrated as they observed patients' progressive deterioration. As patients approached death, caregivers expressed that they tried to "give them all the love" and to have them present for as long as possible, although at the same time caregivers did not want patients to continue to suffer and hoped for "a better place" after this life. Caregivers found their faith to be a source of strength as they continued to care for and be with their loved one until the end.
Conclusion: Caregivers reported "traumatic" and "shocking" experiences during ED care, as well as conflict between wanting the patient's suffering to end and wanting to prolong their lives. They also expressed feelings of gratitude, resignation, love, faith, and hope.
Competing Interests: Declarations Ethics approval and consent to participate The research was conducted with the approval of the Ethics Committee of Rebagliati Hospital (Note 206-CE-GHNERM-GRPR-ESSALUD-2020). All Participants signed an informed consent document, in this study there was not any participant below the age of 16. All methods were performed in accordance with the relevant guidelines and regulations (Declaration of Helsinki). Consent to publish Not applicable. Competing interests The authors declare no competing interests.
(© 2024. The Author(s).)
Databáze: MEDLINE
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