Home care service for children/adolescents with special health care needs: family perception.

Autor:	Lima PMVM; Universidade Federal da Paraíba, Centro de Ciências da Saúde, João Pessoa, Paraíba, Brasil., Fernandes LTB; Universidade Federal do Rio Grande do Norte, Escola de Saúde, Natal, Rio Grande do Norte, Brasil., Santos MM; Centro Universitário de João Pessoa, João Pessoa, Paraíba, Brasil., Cavalcante MEPL; Universidade Federal da Paraíba, Centro de Ciências da Saúde, João Pessoa, Paraíba, Brasil., Neves ET; Secretaria Municipal de Saúde de Natal, Natal, Rio Grande do Norte, Brasil., Toso BRGO; Universidade Federal de Santa Maria, Centro de Ciências da Saúde, Departamento de Enfermagem, Santa Maria, Rio Grande do Sul, Brasil., Collet N; Universidade Estadual do Oeste do Paraná, Centro de Ciências Biológicas e da Saúde, Curso de Enfermagem, Cascavel, Paraná, Brasil., Vaz EMC; Universidade Federal da Paraíba, Centro de ciências da Saúde, Departamento de Enfermagem e Saúde Coletiva, João Pessoa, Paraíba, Brasil.
Jazyk:	English; Portuguese
Zdroj:	Revista gaucha de enfermagem [Rev Gaucha Enferm] 2024 Nov 04; Vol. 45, pp. e20230189. Date of Electronic Publication: 2024 Nov 04 (Print Publication: 2024).
DOI:	10.1590/1983-1447.2024.20230189.en
Abstrakt:	Objective: To apprehend the family's perception of the care provided by home care services to children and adolescents with special health needs. Method: Qualitative, exploratory-descriptive study, carried out with 15 family members of children and adolescents with special health needs served by Home Care Services in seven municipalities in Paraíba, in 2021, selected from nine municipalities identified by previous studies. Data were collected using semi-structured interviews carried out remotely through telephone calls. The empirical material was subjected to Inductive Thematic Analysis and interpreted in light of the concept of health vulnerability. Results: The Home Care Services facilitate minimize the health vulnerabilities of these children and adolescents and their families as they facilitate access to the actions and services of the Health Care Network, provide humanized care focused on promoting health and strengthening bonds, as well as how, they facilitate family decision-making at home regarding users' health needs. Final Considerations: The actions of these services permeate family daily life, enabling the expansion of care practices for family members/caregivers considering their limitations and improving the coordination of Health Care Networks to guarantee comprehensive care.
Databáze:	MEDLINE
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