Co-construction of an instructional module to improve the understanding of cancer screening by people with intellectual disabilities: Strategic choices.

Autor: Petitpierre G; Department of Special Education, University of Fribourg, Fribourg, Switzerland. Electronic address: genevieve.petitpierre@unifr.ch., Otandault A; Oncodéfi, Parc Euromédecine, Montpellier, France. Electronic address: amaelle.otandault@oncodefi.org., Neumann-Michel E; Oncodéfi, Parc Euromédecine, Montpellier, France. Electronic address: elodie.neumann@oncodefi.org., Olivier E; Oncodéfi, Parc Euromédecine, Montpellier, France. Electronic address: elisangela.olivier@oncodefi.org., Palpacuer M; Oncodéfi, Parc Euromédecine, Montpellier, France. Electronic address: marc.palpacuer@oncodefi.org., Lecluse A; Association ' Nous Aussi ', France. Electronic address: anais.lecluse@unapei34.fr., Heber-Suffrin X; Établissement et service d'aide par le travail L'Envol, UNAPEI 34, Castelnau-le-Lez, France. Electronic address: xavier.hebersuffrin@unapei34.fr., Trétarre B; Oncodéfi, Parc Euromédecine, Montpellier, France; Herault Tumor Registry, Montpellier, France; CERPOP Constitutive Team, UMR 1295, Inserm, University of Toulouse III Paul Sabatier, Toulouse, France. Electronic address: tretarre.brigitte@registre-tumeurs-herault.fr., Serrand C; Département de biostatistique, épidémiologie clinique, santé publique et innovation méthodologique, CHU Nîmes, Nîmes, France. Electronic address: Chris.SERRAND@chu-nimes.fr., Satgé D; Oncodéfi, Parc Euromédecine, Montpellier, France; Desbrest Institute of Epidemiology and Public Health, UMR UA11, INSERM, University of Montpellier, Montpellier, France. Electronic address: Daniel.satge@oncodefi.org.
Jazyk: angličtina
Zdroj: Patient education and counseling [Patient Educ Couns] 2024 Oct 16; Vol. 130, pp. 108471. Date of Electronic Publication: 2024 Oct 16.
DOI: 10.1016/j.pec.2024.108471
Abstrakt: Objective: People with intellectual disabilities (ID) have difficulty in accessing oral or written health information presented in a conventional manner what compromises prevention. This study aims to develop accessible information on breast, cervical and colorectal cancer screening for people with ID.
Method: The instructional material has been developed collaboratively by a team involving representatives from different scientific disciplines (medical and psychoeducational) and people with ID. Five principles guided its elaboration, i.e. coconstruction, multimodality, phasing, socio-cognitivism and accessibility.
Results: The material created is a 5-component module including a 20-minute easy-toread and understand oral presentation with a slideshow, a workshop that encourages manipulation and discussion, a booklet to take away, a film to consolidate information and a questionnaire.
Conclusion: Providing accessible information is considered a key action in reestablishing equality in access to cancer health care and preventing a cascade of consequences. The co-construction of the module ensures its social and ecological validity. An interventional study is underway to verify its efficacy.
Practical Implication: The best practices for cancer prevention endorse spending enough time to discuss screening. This accessible module can be used to provide people with ID basic information about screening, increase their adherence, and facilitate the discussion on this issue.
Competing Interests: Declaration of Competing Interest The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.
(Copyright © 2024 The Authors. Published by Elsevier B.V. All rights reserved.)
Databáze: MEDLINE
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