Research Participation and Feedback: Perception of Adolescents and Young Adults Living with HIV in Lagos, Nigeria.

Autor:	Salako AO; Clinical Sciences Department, Nigerian Institute of Medical Research, Lagos, Nigeria. . Email: salako.abideennaheem@gmail.com.; Graduate School of Biomedical Sciences, St. Jude Children's Research Hospital Memphis, TN. USA.; Department of Public Health, Lead City University, Ibadan, Oyo State, Nigeria., Musari-Martins T; Clinical Sciences Department, Nigerian Institute of Medical Research, Lagos, Nigeria. . Email: salako.abideennaheem@gmail.com., Akinsolu FT; Clinical Sciences Department, Nigerian Institute of Medical Research, Lagos, Nigeria. . Email: salako.abideennaheem@gmail.com.; Department of Public Health, Lead City University, Ibadan, Oyo State, Nigeria., Odubela OO; Clinical Sciences Department, Nigerian Institute of Medical Research, Lagos, Nigeria. . Email: salako.abideennaheem@gmail.com., Ezemelue PN; Clinical Sciences Department, Nigerian Institute of Medical Research, Lagos, Nigeria. . Email: salako.abideennaheem@gmail.com., Opaneye B; Clinical Sciences Department, Nigerian Institute of Medical Research, Lagos, Nigeria. . Email: salako.abideennaheem@gmail.com., Bankole S; Department of Public Health, Lead City University, Ibadan, Oyo State, Nigeria., Rahman NO; Clinical Sciences Department, Nigerian Institute of Medical Research, Lagos, Nigeria. . Email: salako.abideennaheem@gmail.com., Idigbe IE; Clinical Sciences Department, Nigerian Institute of Medical Research, Lagos, Nigeria. . Email: salako.abideennaheem@gmail.com., Abubakar AR; Clinical Sciences Department, Nigerian Institute of Medical Research, Lagos, Nigeria. . Email: salako.abideennaheem@gmail.com., David NA; Clinical Sciences Department, Nigerian Institute of Medical Research, Lagos, Nigeria. . Email: salako.abideennaheem@gmail.com.; Department of Public Health, Lead City University, Ibadan, Oyo State, Nigeria., Gbaja-Biamila TA; Clinical Sciences Department, Nigerian Institute of Medical Research, Lagos, Nigeria. . Email: salako.abideennaheem@gmail.com.
Jazyk:	angličtina
Zdroj:	West African journal of medicine [West Afr J Med] 2024 Jul 30; Vol. 41 (7), pp. 748-754.
Abstrakt:	Background: Evidence-based research remains the cornerstone in changing the narrative of wholesome health among Adolescents and Young Adults Living with HIV (AYALHIV). However, little is known about the perceptions of AYALHIV in research participation and outcomes, in low- and middle-income countries, especially in sub-Saharan Africa. This study describes the perception of AYALHIV in research participation and outcome in Lagos, Nigeria. Methods: The study population was drawn from a cohort of participants in a cross-sectional study at the Nigerian Institute of Medical Research. The survey questions were on perceptions of the importance of research participation, the frequency, understanding of participation in research, the interest in the outcome, the knowledge of the interpretation of the outcome and the willingness to participate in future studies. Data obtained was analyzed using SPSS version 26.0. Results: The mean age of the AYALHIV was 15.7(±3.1) years, with a male-to-female ratio of (0.8:1), and 85.7% on antiretroviral drugs for at least five years. Seventy-two percent (46/63) have been involved in previous studies at least once, with only 27% (17/63) informed on the outcome of the research they have ever participated. Only 30% (19) of participants understood they were involved in research, with 92% interested in the study outcome. 87.3% (55) will request more information before participating in future research activities. Conclusion: Educating AYALHIV on research participation is important in promoting concerted efforts by researchers towards improving engagement, patient-centred care, and research dissemination. Competing Interests: The Authors declare that no competing interest exists. (Copyright © 2024 by West African Journal of Medicine.)
Databáze:	MEDLINE
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