A short scale to measure health-related quality of life after traumatic brain injury in children and adolescents (QOLIBRI-OS-KID/ADO): psychometric properties and German reference values.

Autor: Zeldovich M; Institute of Psychology, Faculty of Psychology and Sport Science, University of Innsbruck, Innsbruck, Austria. marina.zeldovich@uibk.ac.at.; Faculty of Psychotherapy Science, Sigmund Freud University, Vienna, Austria. marina.zeldovich@uibk.ac.at., Krol L; Department of Psychology, Clinical Psychology and Psychotherapy, Philipps University of Marburg, Marburg, Germany., Koerte IK; cBRAIN / Department of Child and Adolescent Psychiatry, Psychosomatics, and Psychotherapy, LMU University Hospital, Ludwig-Maximilian University, Munich, Germany.; Psychiatry Neuroimaging Laboratory, Department of Psychiatry, Mass General Brigham, Boston, USA., Cunitz K; Institute of Psychology, Faculty of Psychology and Sport Science, University of Innsbruck, Innsbruck, Austria.; Department of Psychiatry and Psychotherapy, University Medical Center Goettingen, Goettingen, Germany., Kieslich M; Department of Paediatric Neurology, Hospital of Goethe University, Frankfurt, Germany., Henrich M; Department of Paediatric Neurology, Hospital of Goethe University, Frankfurt, Germany., Brockmann K; Interdisciplinary Pediatric Center for Children with Developmental Disabilities and Severe Chronic Disorders, Department of Pediatrics and Adolescent Medicine, University Medical Center, Goettingen, Germany., Buchheim A; Institute of Psychology, Faculty of Psychology and Sport Science, University of Innsbruck, Innsbruck, Austria., Lendt M; Neuropediatrics, St. Mauritius Therapeutic Clinic, Meerbusch, Germany., Auer C; Department of Neurosurgery, Kepler University Hospital GmbH, Johannes Kepler University Linz, Linz, Austria.; Clinical Research Institute für Neurosciences, Faculty of Medicine, Johannes Kepler University Linz, Linz, Austria., Neu A; Department of Neurology and Neuropediatry, VAMED Klinik Geesthacht GmbH, Geesthacht, Germany., Driemeyer J; Department of Pediatrics, University of Hamburg-Eppendorf, Hamburg, Germany., Wartemann U; Department of Neuropediatrics, VAMED Klinik Hohenstücken GmbH, Brandenburg an der Havel, Germany., Thomé C; Department of Neurosurgery, Medical University lnnsbruck, Innsbruck, Austria., Pinggera D; Department of Neurosurgery, Medical University lnnsbruck, Innsbruck, Austria., Berweck S; Specialist Center for Paediatric Neurology, Neurorehabilitation and Epileptology, Schoen Klinik, Vogtareuth, Germany., Bonfert MV; Department of Pediatric Neurology and Developmental Medicine and LMU Center for Development and Children with Medical Complexity, Dr. Von Hauner Children's Hospital, LMU University Hospital, Munich, Germany., Suss J; Department of Pediatric Surgery, Wilhelmstift Catholic Children's Hospital, Hamburg, Germany., Muehlan H; Department of Health and Prevention, University of Greifswald, Greifswald, Germany., von Steinbuechel N; Institute of Psychology, Faculty of Psychology and Sport Science, University of Innsbruck, Innsbruck, Austria.
Jazyk: angličtina
Zdroj: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2024 Nov; Vol. 33 (11), pp. 3039-3056. Date of Electronic Publication: 2024 Aug 31.
DOI: 10.1007/s11136-024-03764-3
Abstrakt: Purpose: The impact of pediatric traumatic brain injury (pTBI) on health-related quality of life (HRQoL) in children and adolescents remains understudied. Short scales have some advantages in terms of economy and administration over longer scales, especially in younger children. The aim of the present study is to psychometrically evaluate the six-item German version of the QOLIBRI-OS-KID/ADO scale for children and adolescents. In addition, reference values from a general German pediatric population are obtained to assist clinicians and researchers in the interpretation of HRQoL after pTBI.
Methods: A total of 297 individuals after TBI and 1997 from a general population sample completed the questionnaire. Reliability, validity, and comparability of the assessed construct were examined.
Results: The questionnaire showed satisfactory reliability (α = 0.75 and ω = 0.81 and α = 0.85 and ω = 0.86 for the TBI and general population samples, respectively). The QOLIBRI-OS-KID/ADO was highly correlated with its long version (R 2  = 67%) and showed an overlap with disease-specific HRQoL (R 2  = 55%) in the TBI sample. The one-dimensional factorial structure could be replicated and tested for measurement invariance between samples, indicating a comparable HRQoL construct assessment. Therefore, reference values and cut-offs indicating clinically relevant impairment could be provided using percentiles stratified by factors significantly associated with the total score in the regression analyses (i.e., age group and gender).
Conclusion: In combination with the cut-offs, the QOLIBRI-OS-KID/ADO provides a cost-effective screening tool, complemented by interpretation guidelines, which may help to draw clinical conclusions and indications such as further administration of a longer version of the instrument to gain more detailed insight into impaired HRQoL domains or omission of further steps in the absence of an indication.
(© 2024. The Author(s).)
Databáze: MEDLINE
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