'A potentially ticking time bomb' - barriers for prevention, diagnosis, and treatment of cardiovascular disease in people with intellectual disabilities.

Autor: Plasil T; Studio Apertura, NTNU Social Research, Norwegian University of Science and Technology, Trondheim, Norway.; Centre for Obesity Research and Innovation, Department of Surgery, St. Olavs Hospital, Trondheim, Norway., Ersfjord EMI; Centre for Obesity Research and Innovation, Department of Surgery, St. Olavs Hospital, Trondheim, Norway.; Centre for e-Health, University of Agder, Kristiansand and Grimstad, Norway., Berge K; The National Institute on Intellectual Disability and Community, Department of Mental Health, Faculty of Medicine and Health Sciences, Norwegian University of Science and Technology, Trondheim, Norway., Oldervoll LM; The National Institute on Intellectual Disability and Community, Department of Mental Health, Faculty of Medicine and Health Sciences, Norwegian University of Science and Technology, Trondheim, Norway.; Center for Crisis Psychology, Faculty of Psychology, University of Bergen, Bergen, Norway.
Jazyk: angličtina
Zdroj: Journal of applied research in intellectual disabilities : JARID [J Appl Res Intellect Disabil] 2024 Nov; Vol. 37 (6), pp. e13279.
DOI: 10.1111/jar.13279
Abstrakt: Background: Research suggests that people with intellectual disabilities have a higher risk for cardiovascular disease than the general population. The aim of this study was to identify barriers for the prevention, diagnosis, and treatment of cardiovascular disease for people with intellectual disabilities.
Method: We conducted individual interviews with relatives and general practitioners and focus group interviews with staff working at an assisted home facility, a cardiac ward, an obesity clinic and two rehabilitation centres (n = 33) in Norway. Inductive approach and thematic analysis were used to analyse the data.
Results: We identified barriers on an individual and a structural level. The underlying reason for these barriers is that health problems, such as cardiovascular disease, are regularly overlooked as the condition of intellectual disability overshadows other possible diagnoses.
Conclusion: This focus on intellectual disability rather than other explanations leads to shortcomings in the prevention, diagnoses, and treatment of cardiovascular disease in this group.
(© 2024 The Author(s). Journal of Applied Research in Intellectual Disabilities published by John Wiley & Sons Ltd.)
Databáze: MEDLINE