Process evaluation of a New psychosocial goal-setting and manualised support intervention for Independence in Dementia (NIDUS-Family).
Autor: | Wyman D; Faculty of Science and Engineering, School of Psychology and Sport Science at Anglia Ruskin University, Anglia Ruskin University, East Road, Cambridge CB1 1PT, UK., Butler LT; Faculty of Science and Engineering, School of Psychology and Sport Science at Anglia Ruskin University, Anglia Ruskin University, East Road, Cambridge CB1 1PT, UK., Morgan-Trimmer S; University of Exeter, The Medical School, Exeter, UK., Bright P; Faculty of Science and Engineering, School of Psychology and Sport Science at Anglia Ruskin University, Anglia Ruskin University, East Road, Cambridge CB1 1PT, UK., Barber J; Division of Psychiatry, University College London, Wing B, Floor 6 Maple House, 149 Tottenham Court Road, London, UK., Budgett J; Centre for Psychiatry and Mental Health, Queen Mary University of London Wolfson Institute of Population Health, Yvonne Carter Building, Turner Street, London E1 2AB, UK., Walters K; Division of Psychiatry, University College London, Wing B, Floor 6 Maple House, 149 Tottenham Court Road, London, UK., Lang I; University of Exeter, The Medical School, Exeter, UK., Rapaport P; Centre for Psychiatry and Mental Health, Queen Mary University of London Wolfson Institute of Population Health, Yvonne Carter Building, Turner Street, London E1 2AB, UK., Banks S; Centre for Psychiatry and Mental Health, Queen Mary University of London Wolfson Institute of Population Health, Yvonne Carter Building, Turner Street, London E1 2AB, UK., Palomo M; Camden and Islington NHS Foundation Trust, Department of Clinical Psychology, St. Pancras Hospital, 4 St. Pancras Way, London, NW1 0PE, UK., Orgeta V; Division of Psychiatry, University College London, Wing B, Floor 6 Maple House, 149 Tottenham Court Road, London, UK., Livingston G; Division of Psychiatry, University College London, Wing B, Floor 6 Maple House, 149 Tottenham Court Road, London, UK., Rockwood K; Division of Geriatric Medicine, Department of Medicine, School of Health Administration, Dalhousie University, Suite 1421-5955 Veterans' Memorial Lane, Halifax, NS B3H 4R2, Canada., Lord K; Centre for Applied Dementia Studies, University of Bradford, Richmond Road, Bradford, West Yorkshire BD7 1DP, UK., Manthorpe J; Social Care Workforce Research Unit, Faculty of Social Science and Public Policy, King's College London, 150 Stamford Street, London SE1 9NN, UK., Dow B; National Ageing Research Institute Ltd, Parkville, VIC, Australia., Hoe J; Gellar Institute of Ageing and Memory, School of Medicine, University of West London, London W5 5RF, UK., Cooper C; Centre for Psychiatry and Mental Health, Queen Mary University of London Wolfson Institute of Population Health, Yvonne Carter Building, Turner Street, London E1 2AB, UK. |
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Jazyk: | angličtina |
Zdroj: | Age and ageing [Age Ageing] 2024 Aug 06; Vol. 53 (8). |
DOI: | 10.1093/ageing/afae181 |
Abstrakt: | Introduction: We report a mixed-methods process evaluation embedded within a randomised controlled trial. We aimed to test and refine a theory of change model hypothesising key causal assumptions to understand how the New Interventions for Independence in Dementia Study (NIDUS)-Family (a manualised, multimodal psychosocial intervention), was effective relative to usual care, on the primary outcome of Goal Attainment Scaling (GAS) over 1 year. Methods: In 2021-2022, intervention-arm dyads completed an acceptability questionnaire developed to test causal assumptions. We conducted qualitative interviews with dyads and intervention facilitators, purposively selected for diverse follow-up GAS scores. We collected observational data from intervention session recordings. We thematically analysed data, then integrated qualitative and quantitative data. Results: 174/204 (85.3%) dyads allocated to NIDUS-Family, fully completed it, 18 partially completed, while 12 received no intervention. We interviewed 27/192 (14%) of dyads receiving any sessions, and 9/10 facilitators; and observed 12 sessions. 47/192 (24.5%) of carers completed the acceptability questionnaire. We identified four themes: (A) 'Someone to talk to helps dyads feel supported'; (B) 'NIDUS-Family helps carers change their perspective'; (C) 'Personalisation helps people living with dementia maintain their identity' and (D) 'Small steps help dyads move forward'. Conclusion: Key causal pathway mechanisms were: a respectful, trusting and impartial relationship with the facilitator: supporting the development of meaningful goals and support to find manageable solutions. Core implementation factors were delivery of the modules from a consistent facilitator across regular sessions. Core contextual factors influencing these mechanisms were dyadic participation and understanding of abilities. (© The Author(s) 2024. Published by Oxford University Press on behalf of the British Geriatrics Society. All rights reserved. For permissions, please email: journals.permissions@oup.com.) |
Databáze: | MEDLINE |
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