Measurement properties of utility-based health-related quality of life measures in cardiac rehabilitation and secondary prevention programs: a systematic review.

Autor: Bulamu NB; Flinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University, Adelaide, Australia. norma.bulamu@flinders.edu.au.; Caring Futures Institute, College of Nursing and Health Sciences, Flinders University, University Drive, South Australia (SA), Bedford Park, Adelaide, 5042, Australia. norma.bulamu@flinders.edu.au.; Mparntwe Centre for Evidence in Health, Flinders University: A JBI Centre of Excellence, Alice Springs, Australia. norma.bulamu@flinders.edu.au., Gebremichael LG; Caring Futures Institute, College of Nursing and Health Sciences, Flinders University, University Drive, South Australia (SA), Bedford Park, Adelaide, 5042, Australia.; Mparntwe Centre for Evidence in Health, Flinders University: A JBI Centre of Excellence, Alice Springs, Australia., Hines S; Mparntwe Centre for Evidence in Health, Flinders University: A JBI Centre of Excellence, Alice Springs, Australia.; Flinders Rural and Remote Health, College of Medicine and Public Health, Flinders University, Alice Springs, Australia., Mpundu-Kaambwa C; Health and Social Care Economics Group, Caring Futures Institute, College of Nursing and Health Sciences, Flinders University, Adelaide, Australia.; Economics of Global Health & Infectious Disease Unit, Melbourne Health Economics, Centre for Health Policy, School of Population and Global Health, The University of Melbourne, Melbourne, Australia., Pearson V; JBI, School of Public Health, The University of Adelaide, Adelaide, Australia., Dafny HA; Caring Futures Institute, College of Nursing and Health Sciences, Flinders University, University Drive, South Australia (SA), Bedford Park, Adelaide, 5042, Australia.; Mparntwe Centre for Evidence in Health, Flinders University: A JBI Centre of Excellence, Alice Springs, Australia., Pinero de Plaza MA; Caring Futures Institute, College of Nursing and Health Sciences, Flinders University, University Drive, South Australia (SA), Bedford Park, Adelaide, 5042, Australia.; Mparntwe Centre for Evidence in Health, Flinders University: A JBI Centre of Excellence, Alice Springs, Australia.; Centre of Research Excellence: Frailty and Healthy Ageing, The University of Adelaide, Adelaide, South Australia, 5000, Australia., Beleigoli A; Flinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University, Adelaide, Australia.; Caring Futures Institute, College of Nursing and Health Sciences, Flinders University, University Drive, South Australia (SA), Bedford Park, Adelaide, 5042, Australia.; Mparntwe Centre for Evidence in Health, Flinders University: A JBI Centre of Excellence, Alice Springs, Australia., Kaambwa B; Flinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University, Adelaide, Australia., Hendriks JM; Caring Futures Institute, College of Nursing and Health Sciences, Flinders University, University Drive, South Australia (SA), Bedford Park, Adelaide, 5042, Australia.; Mparntwe Centre for Evidence in Health, Flinders University: A JBI Centre of Excellence, Alice Springs, Australia.; Centre for Heart Rhythm Disorders, University of Adelaide and Royal Adelaide Hospital, Adelaide, Australia., Clark RA; Caring Futures Institute, College of Nursing and Health Sciences, Flinders University, University Drive, South Australia (SA), Bedford Park, Adelaide, 5042, Australia.; Mparntwe Centre for Evidence in Health, Flinders University: A JBI Centre of Excellence, Alice Springs, Australia.; Southern Adelaide Local Health Network, Bedford Park, South Australia (SA), 5042, Australia.
Jazyk: angličtina
Zdroj: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2024 Sep; Vol. 33 (9), pp. 2299-2320. Date of Electronic Publication: 2024 Jul 03.
DOI: 10.1007/s11136-024-03657-5
Abstrakt: Purpose: To identify utility-based patient-reported outcome measures (PROMs) for assessing health-related quality of life (HRQoL) in cardiac rehabilitation and secondary prevention programs (CR) and appraise existing evidence on their measurement properties. Secondly, to link their items to the International Classification of Functioning Disability and Health (ICF) and the International Consortium of Health Outcome Measures (ICHOM) domains for cardiovascular disease (CVD).
Methods: Eight databases were searched. The review followed the COSMIN and JBI guidelines for measurement properties systematic reviews and PRISMA 2020 reporting guidelines. Non-experimental and observational empirical studies of patients ≥ 18 years of age with CVD undergoing CR and assessed quality of life (QoL) or HRQoL using utility-based PROMs or one accompanied by health state utilities were included.
Results: Nine PROMs were identified with evidence on measurement properties for three measures: the German translations of SF-12, EQ-5D-5L, and MacNew heart disease HRQoL questionnaire. There was moderate quality evidence for responsiveness and hypothesis testing of the SF-12 and EQ-5D-5L, and high-quality evidence for responsiveness and hypothesis testing for the MacNew. All items of SF-12 and EQ-5D were linked to ICF categories, but four items of the MacNew were not classified or defined. All the PROM domains were mapped onto similar constructs from the ICHOM global sets.
Conclusion: Three utility-based PROMs validated in CR were identified: the German versions of the EQ-5D and SF-12 and the MacNew questionnaire. These PROMs are linked to a breadth of ICF categories and all ICHOM global sets. Additional validation studies of PROMs in CR are required.
(© 2024. The Author(s).)
Databáze: MEDLINE
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