Patient-centered development of a bladder cancer survivorship care plan.

Autor: Caloudas AB; Michael E. DeBakey VA Medical Center, Houston VA HSR&D Center for Innovations in Quality, Effectiveness and Safety, 2002 Holcombe Blvd., Houston, TX, 77030, USA. alexandra.caloudas@bcm.edu.; VA South Central Mental Illness Research, Education and Clinical Center, a virtual center, Houston, TX, USA. alexandra.caloudas@bcm.edu.; Menninger Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine, Houston, TX, USA. alexandra.caloudas@bcm.edu., Haltom TM; Michael E. DeBakey VA Medical Center, Houston VA HSR&D Center for Innovations in Quality, Effectiveness and Safety, 2002 Holcombe Blvd., Houston, TX, 77030, USA.; Department of Medicine, Baylor College of Medicine, Houston, TX, USA., Goltz HH; University of Houston-Downtown, Houston, TX, USA., Badr HJ; Department of Medicine, Baylor College of Medicine, Houston, TX, USA., Taylor JM; Michael E. DeBakey VA Medical Center, Houston, TX, USA.
Jazyk: angličtina
Zdroj: Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer [Support Care Cancer] 2024 May 31; Vol. 32 (6), pp. 397. Date of Electronic Publication: 2024 May 31.
DOI: 10.1007/s00520-024-08588-y
Abstrakt: Purpose: This study aimed to develop a patient-centered survivorship care plan (SCP) for US military Veteran bladder cancer (BC) survivors in accordance with the National Academy of Medicine recommendation that survivors receive an SCP at treatment completion. BC, which differentially impacts older men, is a costly and highly recurrent cancer associated with invasive procedures and long-term surveillance. Veteran BC survivors may face challenges navigating the patient-to-survivor transition due to their age and comorbidities.
Methods: We conducted 20 one-on-one qualitative interviews and 2 focus groups with Veteran BC survivors to understand their preferences for information and support to inform SCP development. Data were analyzed using rapid analysis.
Results: Participants voiced concerns about BC's impact on their psychosocial functioning and quality of life. They suggested information on BC recurrences, recommended surveillance schedules, long-term side effects and healthy living, and how and when to seek help if a medical problem arises should be included on the SCP to help manage expectations and access key resources during survivorship. Although participants had varying needs, many recommended including information on supportive resources (e.g., support groups, peer support programs) to manage cancer-related anxiety. Participants also suggested including Veteran-centered information (e.g., Veterans' BC risk factors).
Conclusion: We developed an SCP to help Veteran BC survivors navigate the transition from patient to survivor. Adapting an SCP to address specific needs of the Veteran population was an important step in supporting Veteran BC survivors. Future research should evaluate the potential effectiveness of this SCP at improving Veterans' health outcomes and healthcare experiences.
(© 2024. This is a U.S. Government work and not under copyright protection in the US; foreign copyright protection may apply.)
Databáze: MEDLINE
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