Pilot Testing Transcreated Spanish-Language Study Materials for Symptom Research With Infants and Parents in the Neonatal Intensive Care Unit.

Autor:	Fortney CA; Martha S. Pitzer Center for Women, Children & Youth (Dr Fortney), The Ohio State University College of Nursing, Columbus, Ohio; Center for Biobehavioral Health (Dr Fortney, Ms Garcia, and Dr Gerhardt), Center for Perinatal Research (Dr Slaughter), Abigail Wexner Research Institute, Nationwide Children's Hospital, Columbus, Ohio; Department of Pediatrics (Dr Gerhardt, Dr Baughcum, and Dr Slaughter), The Ohio State University College of Medicine, Columbus, Ohio; Department of Psychology (Dr Gerhardt), The Ohio State University, Columbus, Ohio; Departments of Psychology and Neuropsychology (Dr Baughcum), Division of Neonatology (Dr Slaughter), Nationwide Children's Hospital, Columbus, Ohio; and Department of Educational Psychology (Dr Rodriguez), College of Education, University of Texas at Austin, Austin, Texas., Garcia D, Gerhardt CA, Baughcum AE, Slaughter JL, Rodriguez EM
Jazyk:	angličtina
Zdroj:	Advances in neonatal care : official journal of the National Association of Neonatal Nurses [Adv Neonatal Care] 2024 Jun 01; Vol. 24 (3), pp. 243-252. Date of Electronic Publication: 2024 May 07.
DOI:	10.1097/ANC.0000000000001166
Abstrakt:	Background: Rising admission rates of Hispanic/Latinx families to the neonatal intensive care unit (NICU) have increased the number of non-English-speaking individuals who may wish to participate in research studies. However, a lack of appropriately translated research study materials may limit the opportunity for these families to be involved in research that could impact the care that infants and families receive in the NICU. Purpose: The primary purpose was to pilot test study materials that were transcreated from English to Spanish with the assistance of a bilingual community advisory board with Spanish-speaking parents of NICU infants. Methods: A total of 19 Spanish-speaking parents (15 mothers and 4 fathers) who were representative of the population of interest completed paper-and-pencil surveys, along with a cognitive interview. Preliminary data related to decision-making and goals of care, infant symptoms, and their experiences in the NICU were also collected. Results: The internal reliability of the transcreated study instruments ranged from good to excellent (α= 0.82-0.99). Participants reported that study materials were not offensive and did not make them feel uncomfortable; however, they found some words/phrases to be confusing. Parents had the opportunity to provide suggested wording changes. Implications for Practice and Research: Language barriers and a lack of cultural responsiveness can affect the care that infants and their families receive. More accurate and culturally appropriate transcreation of study materials can remove barriers to research participation and facilitate better communication with non-English-speaking families, which may lead to the development of better-informed evidence-based interventions and clinical practices in the NICU. (Copyright © 2024 by The National Association of Neonatal Nurses.)
Databáze:	MEDLINE
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