Supportive Care Needs in Chinese, Vietnamese, and Korean Americans With Metastatic Cancer: Mixed Methods Protocol for the DAWN Study.

Autor:	Kim JHJ; Department of Medicine, University of California, Irvine, Irvine, CA, United States., Kagawa Singer M; Department of Public Health, University of California, Los Angeles, Los Angeles, CA, United States., Bang L; Department of Medicine, University of California, Irvine, Irvine, CA, United States., Ko A; Department of Medicine, University of California, Irvine, Irvine, CA, United States., Nguyen B; Vietnamese American Cancer Foundation, Fountain Valley, CA, United States., Chen Stokes S; Chinese American Coalition for Compassionate Care, Cupertino, CA, United States., Lu Q; Department of Health Disparities Research, The University of Texas MD Anderson Cancer Center, Houston, TX, United States., Stanton AL; Department of Psychology, University of California, Los Angeles, Los Angeles, CA, United States.
Jazyk:	angličtina
Zdroj:	JMIR research protocols [JMIR Res Protoc] 2024 Apr 22; Vol. 13, pp. e50032. Date of Electronic Publication: 2024 Apr 22.
DOI:	10.2196/50032
Abstrakt:	Background: Asian Americans with metastatic cancer are an understudied population. The Describing Asian American Well-Being and Needs in Cancer (DAWN) Study was designed to understand the supportive care needs of Chinese-, Vietnamese-, and Korean-descent (CVK) patients with metastatic cancer. Objective: This study aims to present the DAWN Study protocol involving a primarily qualitative, convergent, mixed methods study from multiple perspectives (patients or survivors, caregivers, and health care professionals). Methods: CVK Americans diagnosed with solid-tumor metastatic cancer and their caregivers were recruited nationwide through various means (registries, community outreach newsletters, newspapers, radio advertisements, etc). Potentially eligible individuals were screened and consented on the web or through a phone interview. The study survey and interview for patients or survivors and caregivers were provided in English, traditional/simplified Chinese and Cantonese/Mandarin, Vietnamese, and Korean, and examined factors related to facing metastatic cancer, including quality of life, cultural values, coping, and cancer-related symptoms. Community-based organizations assisted in recruiting participants, developing and translating study materials, and connecting the team to individuals for conducting interviews in Asian languages. Health care professionals who have experience working with CVK patients or survivors with metastatic solid cancer were recruited through referrals from the DAWN Study community advisory board and were interviewed to understand unmet supportive care needs. Results: Recruitment began in November 2020; data collection was completed in October 2022. A total of 66 patients or survivors, 13 caregivers, and 15 health care professionals completed all portions of the study. We completed data management in December 2023 and will submit results for patients or survivors and caregivers to publication outlets in 2024. Conclusions: Future findings related to this protocol will describe and understand the supportive care needs of CVK patients or survivors with metastatic cancer and will help develop culturally appropriate psychosocial interventions that target known predictors of unmet supportive care needs in Chinese, Vietnamese, and Korean Americans with metastatic cancer. International Registered Report Identifier (irrid): DERR1-10.2196/50032. (©Jacqueline H J Kim, Marjorie Kagawa Singer, Lisa Bang, Amy Ko, Becky Nguyen, Sandy Chen Stokes, Qian Lu, Annette L Stanton. Originally published in JMIR Research Protocols (https://www.researchprotocols.org), 22.04.2024.)
Databáze:	MEDLINE
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