Healthcare experiences of fibromyalgia patients and their associations with satisfaction and pain relief. A patient survey.

Autor:	Wigers SH; Department of General Practice, Institute of Health and Society, University of Oslo, P.O. Box 1130, Blindern, NO-0318 Oslo, Norway.; Unicare Jeløy, Moss, Norway., Veierød MB; Oslo Centre for Biostatistics and Epidemiology, Department of Biostatistics, Institute of Basic Medical Sciences, University of Oslo, Oslo, Norway., Mengshoel AM; Department of Interdisciplinary Health Sciences, Institute of Health and Society, University of Oslo, Oslo, Norway., Forseth KØ; Independent Researcher, Vestre Sandøya, Norway., Dahli MP; Department of General Practice, Institute of Health and Society, University of Oslo, P.O. Box 1130, Blindern, NO-0318 Oslo, Norway., Juel NG; Department of General Practice, Institute of Health and Society, University of Oslo, P.O. Box 1130, Blindern, NO-0318 Oslo, Norway., Natvig B; Department of General Practice, Institute of Health and Society, University of Oslo, P.O. Box 1130, Blindern, NO-0318 Oslo, Norway.
Jazyk:	angličtina
Zdroj:	Scandinavian journal of pain [Scand J Pain] 2024 Apr 16; Vol. 24 (1). Date of Electronic Publication: 2024 Apr 16 (Print Publication: 2024).
DOI:	10.1515/sjpain-2023-0141
Abstrakt:	Objectives: The etiology of fibromyalgia (FM) is disputed, and there is no established cure. Quantitative data on how this may affect patients' healthcare experiences are scarce. The present study aims to investigate FM patients' pain-related healthcare experiences and explore factors associated with high satisfaction and pain relief. Methods: An anonymous, online, and patient-administered survey was developed and distributed to members of the Norwegian Fibromyalgia Association. It addressed their pain-related healthcare experiences from both primary and specialist care. Odds ratios for healthcare satisfaction and pain relief were estimated by binary logistic regression. Directed acyclic graphs guided the multivariable analyses. Results: The patients ( n = 1,626, mean age: 51 years) were primarily women (95%) with a 21.8-year mean pain duration and 12.7 years in pain before diagnosis. One-third did not understand why they had pain, and 56.6% did not know how to get better. More than half had not received satisfactory information on their pain cause from a physician, and guidance on how to improve was reported below medium. Patients regretted a lack of medical specialized competence on muscle pain and reported many unmet needs, including regular follow-up and pain assessment. Physician-mediated pain relief was low, and guideline adherence was deficient. Only 14.8% were satisfied with non-physician health providers evaluating and treating their pain, and 21.5% were satisfied (46.9% dissatisfied) with their global pain-related healthcare. Patients' knowledge of their condition, physicians' pain competence and provision of information and guidance, agreement in explanations and advice, and the absence of unmet needs significantly increased the odds of both healthcare satisfaction and pain relief. Conclusions: Our survey describes deficiencies in FM patients' pain-related healthcare and suggests areas for improvement to increase healthcare satisfaction and pain relief. (REC# 2019/845, 09.05.19). (© 2024 the author(s), published by De Gruyter.)
Databáze:	MEDLINE
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