Barriers in Cleft Service Access in Sub-Saharan Africa: A Thematic Analysis of Practical Needs of Rural Families.

Autor:	Taiwo AO; Department of Dental and Maxillofacial Surgery, Usmanu Danfodiyo University Teaching Hospital, Sokoto, Nigeria.; Resmile Craniofacial Anomaly Foundation Zamfara, Gusau, Zamfara, Nigeria.; Department of Oral and Maxillofacial Surgery, Faculty of Dental Sciences, College of Health Science, Usmanu Danfodiyo University, Sokoto, Nigeria., Lehmann U; School of Public Health, University of Western Cape, Cape town, South Africa., Scott V; School of Public Health, University of Western Cape, Cape town, South Africa., Shafi'u I; Noma Children Hospital, Sokoto, Nigeria., Lawal SG; Department of Family Medicine, Usmanu Danfodiyo University Teaching Hospital, Sokoto, Nigeria., Abdulmajid U; Department of Otolaryngology/ENT, Usmanu Danfodiyo University Teaching Hospital, Sokoto, Nigeria., Braimah RO; Department of Dental and Maxillofacial Surgery, Usmanu Danfodiyo University Teaching Hospital, Sokoto, Nigeria.; Department of Oral and Maxillofacial Surgery, Faculty of Dental Sciences, College of Health Science, Usmanu Danfodiyo University, Sokoto, Nigeria., Ibikunle AA; Department of Dental and Maxillofacial Surgery, Usmanu Danfodiyo University Teaching Hospital, Sokoto, Nigeria., Abubakar AB; Noma Children Hospital, Sokoto, Nigeria., Mujtaba B; Department of Dental and Maxillofacial Surgery, Usmanu Danfodiyo University Teaching Hospital, Sokoto, Nigeria.; Department of Oral and Maxillofacial Surgery, Faculty of Dental Sciences, College of Health Science, Usmanu Danfodiyo University, Sokoto, Nigeria., Ogbeide ME; Department of Dental and Maxillofacial Surgery, Usmanu Danfodiyo University Teaching Hospital, Sokoto, Nigeria., Labbo-Jadadi S; Department of Dental and Maxillofacial Surgery, Sir Yahyah Memorial Hospital, Birnin-Kebbi, Kebbi, Nigeria., Adigun OI; Resmile Craniofacial Anomaly Foundation Zamfara, Gusau, Zamfara, Nigeria.; Department of Dental and Maxillofacial Surgery, Federal Medical Centre, Gusau, Zamfara, Nigeria., Ile-Ogedengbe BO; Department of Dental and Maxillofacial Surgery, Federal Medical Centre, Birnin-Kebbi, Kebbi Nigeria.
Jazyk:	angličtina
Zdroj:	The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association [Cleft Palate Craniofac J] 2024 Apr 01, pp. 10556656241244976. Date of Electronic Publication: 2024 Apr 01.
DOI:	10.1177/10556656241244976
Abstrakt:	Objective: To explore the experiences and perceptions of barriers of parents and family members of patients with cleft lip and palate in accessing cleft services in remote northwest Nigeria. Design: Face-to-face semi-structured audio recorded interviews were used to obtained qualitative textual data. Thematic analysis using interpretative descriptive techniques was employed to understand the participants' lived experiences with barriers and accessibility to cleft services. Setting: Participants were from Sokoto, Kebbi and Zamfara states in remote northwest, Nigeria. Participants: Consisted of 22 caregivers (17 parents and 5 extended family members) were purposively sampled between 2017 and 2020. Main Outcome Measures: Barriers experienced while accessing cleft services were identified during thematic analysis. Result: Over three quarter of the respondents had patients with both cleft lip and palate and without any previous family history (n = 20). About two-thirds of the participants (n = 15) were females. Most of the interviews were conducted before the surgeries (n = 15). Five Themes Emerged: lack of information, financial difficulty, misrepresentation from health workers, multiple transportation and previous disappointment. Conclusions: Areas of poor awareness, misinformation from primary health care workers, financial hurdles, multiple transportation logistics and others were identified. Aggressive broadcasting of information through radio, timely treatment and collaboration with influential religious leaders were emphasized. Support, grants and subsidies from government and voluntary agencies are encouraged to mitigate the huge out of pocket cost of cleft care in the region. Competing Interests: Declaration of Conflicting InterestsThe authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
Databáze:	MEDLINE
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