Diabetes distress in urban Black youth with type 1 diabetes and their caregivers: associations with glycemic control, depression, and health behaviors.

Autor:	Evans M; Pritzker Department of Psychiatry and Behavioral Health, Ann and Robert H. Lurie Children's Hospital and Psychiatry and Behavioral Sciences, Northwestern Feinberg School of Medicine, Chicago, IL, United States., Ellis DA; School of Medicine, Wayne State University, Detroit, MI, United States., Vesco AT; Pritzker Department of Psychiatry and Behavioral Health, Ann and Robert H. Lurie Children's Hospital and Psychiatry and Behavioral Sciences, Northwestern Feinberg School of Medicine, Chicago, IL, United States., Feldman MA; Division of Psychology, Johns Hopkins, All Children's Hospital, St Petersburg, FL, United States., Weissberg-Benchell J; Pritzker Department of Psychiatry and Behavioral Health, Ann and Robert H. Lurie Children's Hospital and Psychiatry and Behavioral Sciences, Northwestern Feinberg School of Medicine, Chicago, IL, United States., Carcone AI; School of Medicine, Wayne State University, Detroit, MI, United States., Miller J; Pritzker Department of Psychiatry and Behavioral Health, Ann and Robert H. Lurie Children's Hospital and Psychiatry and Behavioral Sciences, Northwestern Feinberg School of Medicine, Chicago, IL, United States., Boucher-Berry C; Division of Pediatric Endocrinology, University of Illinois at Chicago, Chicago, IL, United States., Buggs-Saxton C; School of Medicine, Wayne State University, Detroit, MI, United States., Degnan B; Pediatric Endocrinology, Ascension St John Children's Hospital, Detroit, MI, United States., Dekelbab B; Pediatric Endocrinology, Beaumont Health Care, Royal Oak, MI, United States., Drossos T; Department of Psychiatry and Behavioral Neuroscience, University of Chicago, Chicago, IL, United States.
Jazyk:	angličtina
Zdroj:	Journal of pediatric psychology [J Pediatr Psychol] 2024 Jun 13; Vol. 49 (6), pp. 394-404.
DOI:	10.1093/jpepsy/jsad096
Abstrakt:	Objectives: Adolescents with type 1 diabetes (T1D) and their caregivers endorse high diabetes distress (DD). Limited studies have documented the impact of DD on Black youth. The aims of the present study were to (1) describe DD among a sample of Black adolescents with T1D and their caregivers, (2) compare their DD levels with published normative samples, and (3) determine how DD relates to glycemic outcomes, diabetes self-management, parental monitoring of diabetes, and youth depressive symptoms. Methods: Baseline data from a multicenter clinical trial were used. Participants (N = 155) were recruited from 7 Midwestern pediatric diabetes clinics. Hemoglobin A1c (HbA1c) and measures of DD, parental monitoring of diabetes care, youth depression and diabetes management behaviors were obtained. The sample was split into (1) adolescents (ages 13-14; N = 95) and (2) preadolescents (ages 10-12; N = 60). Analyses utilized Cohen's d effect sizes, Pearson correlations, t-tests, and multiple regression. Results: DD levels in youth and caregivers were high, with 45%-58% exceeding either clinical cutoff scores or validation study sample means. Higher DD in youth and caregivers was associated with higher HbA1c, lower diabetes self-management, and elevated depressive symptoms, but not with parental monitoring of diabetes management. Conclusions: Screening for DD in Black youth with T1D and caregivers is recommended, as are culturally informed interventions that can reduce distress levels and lead to improved health outcomes. More research is needed on how systemic inequities contribute to higher DD in Black youth and the strategies/policy changes needed to reduce these inequities. (© The Author(s) 2024. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com.)
Databáze:	MEDLINE
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