Chiari Malformation Type 1 and Syringomyelia: Why Do Patients Claim for International Guidelines? Commentary on the 2021 Chiari and Syringomyelia Consensus Document.

Autor: Massimi L; Pediatric Neurosurgery, Fondazione Policlinico Universitario A. Gemelli IRCCS - Università Cattolica del Sacro Cuore, Rome, Italy., Vetrano IG; Department of Neurosurgery, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy., Peretta P; Pediatric Neurosurgery, AOU Città della Salute e della Scienza di Torino, Turin, Italy., Chiapparini L; Department of Neuroradiology, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy., Saletti V; Developmental Neurology Unit, Mariani Foundation Center for Complex Disabilities, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy., Ciaramitaro P; CRESSC, Clinical Neurophysiology, Department of Neuroscience, AOU Citta' della Salute e della Scienza di Torino, Turin, Italy., Visocchi M; Institute of Neurosurgery, Catholic University of Rome, Rome, Italy., Valentini LG; Department of Neurosurgery, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy. laura.valentini@istituto-besta.it.
Jazyk: angličtina
Zdroj: Acta neurochirurgica. Supplement [Acta Neurochir Suppl] 2023; Vol. 135, pp. 139-145.
DOI: 10.1007/978-3-031-36084-8_23
Abstrakt: The diagnosis of Chiari malformation type 1 (CM1) and Syringomyelia (Syr) has become increasingly common during the past few years. Contemporarily, the body of literature on these topics is growing, although randomized controlled studies on significant case series to drive guidelines are missing in the pediatric and adult populations. As a result of the different opinions about surgical indications and techniques raised by CM1-Syr, an increasing number of well-informed but disoriented patients is emerging. To bridge this gap, an International Consensus Conference on CM1-Syr held in Milan in November 2019 aimed to find a consensus among international experts, to suggest some recommendations that, in the near future, could lead to guidelines. Here, we comment on the most relevant recommendations about the definition, diagnosis, surgical management, failures and re-intervention, and outcome. We also focus on some "wrong" indications or techniques that, although widely disapproved by the experts, and negatively experienced by many patients, are still largely in use.
(© 2023. The Author(s), under exclusive license to Springer Nature Switzerland AG.)
Databáze: MEDLINE