Fibromyalgia pain management effectiveness from the patient perspective: a qualitative evidence synthesis.

Autor: Climent-Sanz C; Department of Nursing and Physiotherapy, University of Lleida, Lleida, Spain.; Health Care Research Group (GRECS), Lleida Institute for Biomedical Research Dr. Pifarré Foundation, IRBLleida, Lleida, Spain.; Consolidated Research Group in Society, Health, Education and Culture of Care (GESEC), Institute for Social and Territorial Development (INDEST), University of Lleida, Lleida, Spain.; Department of Psychiatry and Behavioral Sciences, Johns Hopkins School of Medicine, Baltimore, MD, USA., Hamilton KR; Department of Psychiatry and Behavioral Sciences, Johns Hopkins School of Medicine, Baltimore, MD, USA., Martínez-Navarro O; Department of Nursing and Physiotherapy, University of Lleida, Lleida, Spain.; Health Care Research Group (GRECS), Lleida Institute for Biomedical Research Dr. Pifarré Foundation, IRBLleida, Lleida, Spain., Briones-Vozmediano E; Department of Nursing and Physiotherapy, University of Lleida, Lleida, Spain.; Health Care Research Group (GRECS), Lleida Institute for Biomedical Research Dr. Pifarré Foundation, IRBLleida, Lleida, Spain.; Consolidated Research Group in Society, Health, Education and Culture of Care (GESEC), Institute for Social and Territorial Development (INDEST), University of Lleida, Lleida, Spain., Gracia-Lasheras M; Department of Nursing and Physiotherapy, University of Lleida, Lleida, Spain., Fernández-Lago H; Department of Nursing and Physiotherapy, University of Lleida, Lleida, Spain.; Health Care Research Group (GRECS), Lleida Institute for Biomedical Research Dr. Pifarré Foundation, IRBLleida, Lleida, Spain.; Consolidated Research Group in Society, Health, Education and Culture of Care (GESEC), Institute for Social and Territorial Development (INDEST), University of Lleida, Lleida, Spain., Valenzuela-Pascual F; Department of Nursing and Physiotherapy, University of Lleida, Lleida, Spain.; Health Care Research Group (GRECS), Lleida Institute for Biomedical Research Dr. Pifarré Foundation, IRBLleida, Lleida, Spain.; Consolidated Research Group in Society, Health, Education and Culture of Care (GESEC), Institute for Social and Territorial Development (INDEST), University of Lleida, Lleida, Spain., Finan PH; Department of Anesthesiology, University of VA School of Medicine, Charlottesville, VA, USA.
Jazyk: angličtina
Zdroj: Disability and rehabilitation [Disabil Rehabil] 2024 Oct; Vol. 46 (20), pp. 4595-4610. Date of Electronic Publication: 2023 Nov 15.
DOI: 10.1080/09638288.2023.2280057
Abstrakt: Purpose: This qualitative evidence synthesis aimed to identify and integrate findings where adults with fibromyalgia discussed how they managed their pain, and their perceptions of prescribed treatments from healthcare professionals.
Materials and Methods: A comprehensive search strategy was implemented in PubMed, Scopus, ISI Web of Science, and Cinahl Plus databases. The GRADE-CERQual framework was used to evaluate the findings confidence. The findings were analyzed using an inductive thematic analysis approach.
Results: A total of 35 studies ( N  = 728) were included. The confidence in the findings ranged from high to low confidence. Patients with fibromyalgia often do not benefit from seeking medical attention due to provider stigma, and have varying views on medication effectiveness commonly reporting feeling like "walking chemists." They find mixed effects from exercise, and consider psychological support essential, although the benefits of cognitive-behavioral therapy were controversial. Combining cognitive-behavioral therapy with physical exercise appears more effective, while natural and complementary therapies have short-term benefits and high costs.
Conclusions: Pain management is a source for frustration and an unmet need for patients with fibromyalgia. The current findings provide crucial insight for providers and researchers; and support the need for fibromyalgia phenotyping and precision medicine approaches to pain management.Implications for RehabilitationChronic widespread pain is the defining feature of fibromyalgia, yet pain reduction is often an unmet need for these individuals.The lack of effective treatments resulting in long-term relief proves frustrating for patients and healthcare providers.Rehabilitation professional should consider the unique insight into this complex, heterogeneous condition that this qualitative synthesis provides to better understand their patient's perspective on pain management.Given the differing perspectives on pain treatment approaches individuals with fibromyalgia report, providers should discuss with each patient their current strategies and take a patient-centered, individualized approach to form an effective treatment plan.
Databáze: MEDLINE