The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia.

Autor:	Hägglund M; Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.; Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden., Kharko A; Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.; Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden.; School of Psychology, Faculty of Health, University of Plymouth, Plymouth, United Kingdom., Hagström J; Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.; Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden., Bärkås A; Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.; Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden., Blease C; Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.; Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden.; Department of Medicine, Division of General Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, MA, United States., Cajander Å; Department of Information Technology, Uppsala University, Uppsala, Sweden., DesRoches C; Department of Medicine, Division of General Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, MA, United States., Fagerlund AJ; Norwegian Centre for E-Health Research, University Hospital of North Norway, Tromsø, Norway., Haage B; E-Medicine Centre, Department of Health Technologies, Tallinn University of Technology, Tallinn, Estonia., Huvila I; Department of Archives, Libraries & Museums, Uppsala University, Uppsala, Sweden., Hörhammer I; Department of Computer Science, Aalto University, Espoo, Finland., Kane B; Business School, Karlstad University, Karlstad, Sweden., Klein GO; Centre for Empirical Research on Information Systems, School of Business, Örebro University, Örebro, Sweden., Kristiansen E; Norwegian Centre for E-Health Research, University Hospital of North Norway, Tromsø, Norway., Luks K; E-Medicine Centre, Department of Health Technologies, Tallinn University of Technology, Tallinn, Estonia., Moll J; Centre for Empirical Research on Information Systems, School of Business, Örebro University, Örebro, Sweden., Muli I; Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.; Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden., Raphaug EH; Norwegian Centre for E-Health Research, University Hospital of North Norway, Tromsø, Norway., Rexhepi H; School of Informatics, University of Skövde, Skövde, Sweden., Riggare S; Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.; Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden., Ross P; E-Medicine Centre, Department of Health Technologies, Tallinn University of Technology, Tallinn, Estonia., Scandurra I; Centre for Empirical Research on Information Systems, School of Business, Örebro University, Örebro, Sweden., Simola S; Department of Computer Science, Aalto University, Espoo, Finland., Soone H; E-Medicine Centre, Department of Health Technologies, Tallinn University of Technology, Tallinn, Estonia., Wang B; Norwegian Centre for E-Health Research, University Hospital of North Norway, Tromsø, Norway., Ghorbanian Zolbin M; Department of Computer Science, Aalto University, Espoo, Finland., Åhlfeldt RM; School of Informatics, University of Skövde, Skövde, Sweden., Kujala S; Department of Computer Science, Aalto University, Espoo, Finland., Johansen MA; Norwegian Centre for E-Health Research, University Hospital of North Norway, Tromsø, Norway.; Department of Clinical Medicine, Telemedicine and E-health Research Group, Arctic University of Norway, Tromsø, Norway.
Jazyk:	angličtina
Zdroj:	Journal of medical Internet research [J Med Internet Res] 2023 Nov 13; Vol. 25, pp. e47573. Date of Electronic Publication: 2023 Nov 13.
DOI:	10.2196/47573
Abstrakt:	Background: Although many surveys have been conducted on patients accessing their own health records in recent years, there is a limited amount of nationwide cross-country data available on patients' views and preferences. To address this gap, an international survey of patient users was conducted in the Nordic eHealth project, NORDeHEALTH. Objective: We aimed to investigate the sociodemographic characteristics and experiences of patients who accessed their electronic health records (EHRs) through national patient portals in Norway, Sweden, Finland, and Estonia. Methods: A cross-sectional web-based survey was distributed using the national online health portals. The target participants were patients who accessed the national patient portals at the start of 2022 and who were aged ≥15 years. The survey included a mixture of close-ended and free-text questions about participant sociodemographics, usability experience, experiences with health care and the EHR, reasons for reading health records online, experience with errors, omissions and offense, opinions about security and privacy, and the usefulness of portal functions. In this paper, we summarized the data on participant demographics, past experience with health care, and the patient portal through descriptive statistics. Results: In total, 29,334 users completed the survey, of which 9503 (32.40%) were from Norway, 13,008 (44.35%) from Sweden, 4713 (16.07%) from Finland, and 2104 (7.17%) from Estonia. National samples were comparable according to reported gender, with about two-thirds identifying as women (19,904/29,302, 67.93%). Age distributions were similar across the countries, but Finland had older users while Estonia had younger users. The highest attained education and presence of health care education varied among the national samples. In all 4 countries, patients most commonly rated their health as "fair" (11,279/29,302, 38.48%). In Estonia, participants were more often inclined to rate their health positively, whereas Norway and Sweden had the highest proportion of negative health ratings. Across the whole sample, most patients received some care in the last 2 years (25,318/29,254, 86.55%). Mental health care was more common (6214/29,254, 21.24%) than oncological care (3664/29,254, 12.52%). Overall, most patients had accessed their health record "2 to 9 times" (11,546/29,306, 39.4%), with the most frequent users residing in Sweden, where about one-third of patients accessed it "more than 20 times" (4571/13,008, 35.14%). Conclusions: This is the first large-scale international survey to compare patient users' sociodemographics and experiences with accessing their EHRs. Although the countries are in close geographic proximity and demonstrate similar advancements in giving their residents online records access, patient users in this survey differed. We will continue to investigate patients' experiences and opinions about national patient-accessible EHRs through focused analyses of the national and combined data sets from the NORDeHEALTH 2022 Patient Survey. (©Maria Hägglund, Anna Kharko, Josefin Hagström, Annika Bärkås, Charlotte Blease, Åsa Cajander, Catherine DesRoches, Asbjørn Johansen Fagerlund, Barbara Haage, Isto Huvila, Iiris Hörhammer, Bridget Kane, Gunnar O Klein, Eli Kristiansen, Kerli Luks, Jonas Moll, Irene Muli, Eline Hovstad Raphaug, Hanife Rexhepi, Sara Riggare, Peeter Ross, Isabella Scandurra, Saija Simola, Hedvig Soone, Bo Wang, Maedeh Ghorbanian Zolbin, Rose-Mharie Åhlfeldt, Sari Kujala, Monika Alise Johansen. Originally published in the Journal of Medical Internet Research (https://www.jmir.org), 13.11.2023.)
Databáze:	MEDLINE
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