Kawasaki disease: patients' transition journey and recommendations for adult care.

Autor:	Chahal N; Labatt Family Heart Centre, The Hospital for Sick Children, Toronto, ON, Canada.; Department of Pediatrics, University of Toronto, Toronto, ON, Canada., Rush J; Faculty of Health Sciences, McMaster University, Hamilton, ON, Canada., Lardizabal A; Cardiovascular Surgery, The Hospital for Sick Children, Toronto, ON, Canada., Nobile R; Labatt Family Heart Centre, The Hospital for Sick Children, Toronto, ON, Canada., Delayun C; Peter Munk Cardiac Centre, University Health Network, Toronto, ON, Canada., Collins T; Peter Munk Cardiac Centre, University Health Network, Toronto, ON, Canada., Thorne S; Peter Munk Cardiac Centre, University Health Network, Toronto, ON, Canada.; Department of Medicine, University of Toronto, Toronto, ON, Canada., McCrindle BW; Labatt Family Heart Centre, The Hospital for Sick Children, Toronto, ON, Canada.; Department of Pediatrics, University of Toronto, Toronto, ON, Canada.
Jazyk:	angličtina
Zdroj:	Cardiology in the young [Cardiol Young] 2024 Apr; Vol. 34 (4), pp. 793-802. Date of Electronic Publication: 2023 Oct 13.
DOI:	10.1017/S1047951123003578
Abstrakt:	Background: Children who develop coronary artery aneurysms after Kawasaki disease are at risk for cardiovascular morbidity, requiring health care transition and lifelong follow-up with an adult specialist. Follow-up losses after health care transition have been reported but without outcome and patient experience evaluation. Objective: The Theoretical Domains Framework underpinned our aim to explore the required self-care behaviours and experiences of young adults' post-health care transition. Methods: A qualitative description approach was used for virtual, 1:1 interviews with 11 participants, recruited after health care transition from a regional cardiac centre in Ontario. Directed content analysis was employed. Results: Health, psychosocial, and lifestyle challenges were compounded by a sense of loss. Six themes emerged within the Theoretical Domains Framework categories. Participants offered novel health care transition programme recommendations. Conclusions: The realities of health care transition involve multiple, overlapping stressors for young adults with Kawasaki disease and coronary artery aneurysms. Our findings will inform a renewed health care transition programme and will include outcome evaluation.
Databáze:	MEDLINE
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