Aotearoa genomic data repository: An āhuru mōwai for taonga species sequencing data.

Autor: Te Aika B; Research and Enterprise Office, University of Otago, Dunedin, New Zealand., Liggins L; School of Natural Sciences, Massey University, Auckland, New Zealand.; Genomics Aotearoa, New Zealand., Rye C; New Zealand eScience Infrastructure, University of Auckland, Auckland, New Zealand., Perkins EO; New Zealand eScience Infrastructure, University of Auckland, Auckland, New Zealand., Huh J; New Zealand eScience Infrastructure, University of Auckland, Auckland, New Zealand., Brauning R; Genomics Aotearoa, New Zealand.; Invermay Agricultural Centre, AgResearch Ltd, Mosgiel, Otago, New Zealand., Godfery T; Genomics Aotearoa, New Zealand.; Department of Biochemistry, University of Otago, Dunedin, New Zealand., Black MA; Genomics Aotearoa, New Zealand.; Department of Biochemistry, University of Otago, Dunedin, New Zealand.
Jazyk: angličtina
Zdroj: Molecular ecology resources [Mol Ecol Resour] 2023 Sep 15. Date of Electronic Publication: 2023 Sep 15.
DOI: 10.1111/1755-0998.13866
Abstrakt: The Aotearoa Genomic Data Repository (AGDR) is an initiative to provide a secure within-nation option for the storage, management and sharing of non-human genomic data generated from biological and environmental samples originating in Aotearoa New Zealand. This resource has been developed to follow the principles of Māori Data Sovereignty, and to enable the right of kaitiakitanga (guardianship), so that iwi, hapū and whānau (tribes, kinship groups and families) can effectively exercise their responsibilities as guardians over biological entities that they regard as taonga (precious or treasured). While the repository is designed to facilitate the sharing of data-making it findable by researchers and interoperable with data held in other genomic repositories-the decision-making process regarding who can access the data is entirely in the hands of those holding kaitiakitanga over each data set. No data are made available to the requesting researcher until the request has been approved, and the conditions for access (which can vary by data set) have been agreed to. Here we describe the development of the AGDR, from both a cultural perspective, and a technical one, and outline the processes that underpin its operation.
(© 2023 The Authors. Molecular Ecology Resources published by John Wiley & Sons Ltd.)
Databáze: MEDLINE
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