The biological sample collection of the OFSEP French MS registry: An essential tool dedicated to researchers.

Autor: Brocard G; Lyon University, University Claude Bernard Lyon 1, F-69000, Lyon, France; Hospices Civils de Lyon, Neurology Department, Sclérose en Plaques, Pathologies de la Myéline et Neuro-Inflammation, F-69677, Bron, France; Observatoire Français de la Sclérose en Plaques, Centre de Recherche en Neurosciences de Lyon, INSERM 1028 and CNRS UMR 5292, F-69003, Lyon, France; EUGENE DEVIC EDMUS Foundation against Multiple Sclerosis, State-Approved Foundation, F-69677, Bron, France., Casey R; Lyon University, University Claude Bernard Lyon 1, F-69000, Lyon, France; Hospices Civils de Lyon, Neurology Department, Sclérose en Plaques, Pathologies de la Myéline et Neuro-Inflammation, F-69677, Bron, France; Observatoire Français de la Sclérose en Plaques, Centre de Recherche en Neurosciences de Lyon, INSERM 1028 and CNRS UMR 5292, F-69003, Lyon, France; EUGENE DEVIC EDMUS Foundation against Multiple Sclerosis, State-Approved Foundation, F-69677, Bron, France., Dufay N; Hospices Civils de Lyon, Biological Ressource Center (BRIF N BB-0033-00046), F-69677, Bron, France., Marignier R; Lyon University, University Claude Bernard Lyon 1, Research on Healthcare Performance (RESHAPE), INSERM U1290, F-69000, Lyon, France; Hospices Civils de Lyon, Neurology Department, Sclérose en Plaques, Pathologies de la Myéline et Neuro-Inflammation, Centre de Référence des Maladies Inflammatoires Rares du Cerveau et de la Moelle (MIRCEM), F-69677, Bron, France., Michel L; Neurology Department, Rennes University Hospital, Rennes, France; Clinical Neuroscience Centre, CIC_P1414 INSERM, Rennes University Hospital, Rennes University, Rennes, France., Hisbergues M; Lille University Hospital, Inserm, Lille University, Biological Resource Center of CIC 1403 (BRIF N BB-0033-00030), F-59000, Lille, France., Ayrignac X; University of Montpellier, INM, INSERM, Department of Neurology, Montpellier University Hospital, Montpellier, France., Lehmann S; Montpellier University, INM INSERM, Montpellier University Hospital IRMB (BRIF N BB-0033-00059), Montpellier, France., Thouvenot E; Department of Neurology, Nimes University Hospital, F-30029, Nimes, France; Institut de Génomique Fonctionnelle, UMR5203, INSERM 1191, Montpellier University, F-34094, Montpellier, France., Gallot G; Nantes University, Nantes University Hospital, Biological Resource Center (BRIF N BB-0033-00040), F-44000, Nantes, France., Collongues N; Department of Neurology, University Hospital of Strasbourg, Strasbourg, France; Center for Clinical Investigation, INSERM U1434, Strasbourg, France; Biopathology of Myelin, Neuroprotection and Therapeutic Strategy, INSERM U1119, Strasbourg, France; University Department of Pharmacology, Addictology, Toxicology and Therapeutic, Strasbourg University, Strasbourg, France., Herpe YE; Amiens Picardie University Hospital, Research Department, Biobanque de Picardie (BRIF N BB-0033-00017), F-80000, Amiens, France., Lebrun-Frenay C; Nice Côte d'Azur University UR2CA-URRIS, Pasteur2 University Hospital, Neurology MS Clinic, Nice, France., Cotton F; MRI Center Lyon Sud Hospital, Hospices Civils de Lyon, Lyon, France; CREATIS - CNRS UMR 5220 & INSERM U1044, University Claude Bernard Lyon 1, Lyon, France., De Sèze J; Strasbourg University Hospital, Hautepierre Hospital, Service des Maladies Inflammatoires du Système Nerveux - Neurology, Strasbourg, France., Guillemin F; CIC 1433 Epidémiologie Clinique, Nancy University Hospital, Inserm and Lorraine University, Nancy, France., Moreau T; Department of Neurology, Dijon Bourgogne University Hospital, EA4184, F-21000, Dijon, France., Pelletier J; Aix Marseille University, APHM, Timone Hospital, Pôle de Neurosciences Cliniques, Neurologie Department, F-13005, Marseille, France., Stankoff B; Sorbonne University, UPMC Paris 06, Brain and Spine Institute, ICM, Hôpital de la Pitié Salpêtrière, Inserm UMR S 1127, CNRS UMR 7225, and Department of Neurology, AP-HP, Saint-Antoine Hospital, F-75000, Paris, France., Vukusic S; Lyon University, University Claude Bernard Lyon 1, F-69000, Lyon, France; Hospices Civils de Lyon, Neurology Department, Sclérose en Plaques, Pathologies de la Myéline et Neuro-Inflammation, F-69677, Bron, France; Observatoire Français de la Sclérose en Plaques, Centre de Recherche en Neurosciences de Lyon, INSERM 1028 and CNRS UMR 5292, F-69003, Lyon, France; EUGENE DEVIC EDMUS Foundation against Multiple Sclerosis, State-Approved Foundation, F-69677, Bron, France., Zephir H; Lille University, Inserm U1172, Lille University Hospital, Lille, France., Laplaud D; Nantes University Hospital, Neurology Department, CRC-SEP, Nantes University, INSERM, CIC 1413, Center for Research in Transplantation and Translational Immunology, UMR 1064, F-44000, Nantes, France. Electronic address: David.Laplaud@univ-nantes.fr.
Jazyk: angličtina
Zdroj: Multiple sclerosis and related disorders [Mult Scler Relat Disord] 2023 Sep; Vol. 77, pp. 104872. Date of Electronic Publication: 2023 Jul 07.
DOI: 10.1016/j.msard.2023.104872
Abstrakt: Today's medicine strives to be personalized, preventive, predictive and participatory. This implies to have access to multimodal data to better characterize patients groups and to combine clinical and imaging data with high-quality biological samples. Collecting such data is one of the objectives of the Observatoire français de la sclérose en plaques (OFSEP), the French MS registry. On December 2022, the OFSEP biocollection includes 4,888 patients with scientific characteristics and about 90,000 samples. Thanks to its richness, this biocollection open for the scientific community, contributes to address unmet needs in MS through identification of multiomics determinants of MS activity, progression and secondary effects.
Competing Interests: Declaration of Competing Interest The authors declare the following financial interests/personal relationships which may be considered as potential competing interests: Laure Michel reports a relationship with Biogen that includes: consulting or advisory. Laure Michel reports a relationship with Teva Health that includes: consulting or advisory. Laure Michel reports a relationship with Roche that includes: consulting or advisory. Laure Michel reports a relationship with Sanofi Genzyme that includes: consulting or advisory. Laure Michel reports a relationship with Janssen Pharmaceuticals Inc that includes: consulting or advisory. Laure Michel reports a relationship with Novartis that includes: consulting or advisory. Laure Michel reports a relationship with Merck & Co Inc that includes: consulting or advisory. Eric Thouvenot reports a relationship with Actelion Ltd that includes: consulting or advisory, speaking and lecture fees, and travel reimbursement. Eric Thouvenot reports a relationship with Biogen that includes: consulting or advisory, speaking and lecture fees, and travel reimbursement. Eric Thouvenot reports a relationship with Bristol Myers Squibb Co that includes: consulting or advisory, speaking and lecture fees, and travel reimbursement. Eric Thouvenot reports a relationship with Merck & Co Inc that includes: consulting or advisory, speaking and lecture fees, and travel reimbursement. Eric Thouvenot reports a relationship with Novartis that includes: consulting or advisory, speaking and lecture fees, and travel reimbursement. Eric Thouvenot reports a relationship with Roche that includes: consulting or advisory, speaking and lecture fees, and travel reimbursement. Sandra Vukusic reports a relationship with Biogen Inc that includes: speaking and lecture fees and travel reimbursement. Sandra Vukusic reports a relationship with Bristol Myers Squibb Co that includes: speaking and lecture fees and travel reimbursement. Sandra Vukusic reports a relationship with Janssen Pharmaceuticals Inc that includes: speaking and lecture fees and travel reimbursement. Sandra Vukusic reports a relationship with Merck & Co Inc that includes: speaking and lecture fees and travel reimbursement. Sandra Vukusic reports a relationship with Novartis that includes: speaking and lecture fees and travel reimbursement. Sandra Vukusic reports a relationship with Roche that includes: speaking and lecture fees and travel reimbursement. Sandra Vukusic reports a relationship with Sandoz Inc that includes: speaking and lecture fees and travel reimbursement. Sandra Vukusic reports a relationship with Sanofi Genzyme that includes: speaking and lecture fees and travel reimbursement. Helene Zephir reports a relationship with Alexion that includes: consulting or advisory. Helene Zephir reports a relationship with Biogen Inc that includes: consulting or advisory. Helene Zephir reports a relationship with Horizon Therapeutics plc that includes: consulting or advisory. Helene Zephir reports a relationship with Merck & Co Inc that includes: consulting or advisory. Helene Zephir reports a relationship with Novartis that includes: consulting or advisory. Helene Zephir reports a relationship with Sanofi that includes: consulting or advisory. Helene Zephir reports a relationship with Roche that includes: consulting or advisory and funding grants. Helene Zephir reports a relationship with Foundation for Help in Research of Multiple Sclerosis that includes: funding grants.
(Copyright © 2023. Published by Elsevier B.V.)
Databáze: MEDLINE
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