The perception of disability in cerebral palsy: a cross-sectional study using the WHODAS 2.0.

Autor: Pizzighello S; Scientific Institute, IRCCS E.Medea, Conegliano, Treviso, Italy., Raggi A; Fondazione IRCCS Istituto Neurologico Carlo Besta, UOC Neurologia Salute Pubblica E Disabilità, Lombardia, Italy., Vavla M; Department of Women's and Children's Health, Padoua University Hospital, Child and Adolescent Neuropsychiatry, Padoua, Italy., Uliana M; Scientific Institute, IRCCS E.Medea, Conegliano, Treviso, Italy., Pellegri A; Scientific Institute, IRCCS E.Medea, Scientific Institute, IRCCS, Bosisio Parini, Lecco, Italy., Martinuzzi M; Department of medecine, King's College London GKT School of Medical Education, London, UK., Martinuzzi A; Scientific Institute, IRCCS E.Medea, Conegliano, Treviso, Italy.
Jazyk: angličtina
Zdroj: Developmental neurorehabilitation [Dev Neurorehabil] 2023 Jul; Vol. 26 (5), pp. 302-308. Date of Electronic Publication: 2023 Jul 04.
DOI: 10.1080/17518423.2023.2232002
Abstrakt: This observational study aims to describe the level of perceived disability in Cerebral Palsy (CP). We described the perception of adults by using the interviewer-administered version of the WHO disability assessment schedule (WHODAS 2.0). In case of intellectual disability (ID), the proxy-administered version was used, and a caregiver was asked to report the difficulties experienced by the patient; 199 patients were enrolled. The level of perceived disability was higher when referred to patients with ID (proxy report) than when referred to patients without ID ( p  < .001). For all patients, the level of perceived disability varied depending on the severity and the localization of motor impairment (both p  < .001). No differences were observed based on the type of motor impairment. The perceived disability was correlated with age only for patients with no ID ( p  < .05). The WHODAS 2.0 may be a useful tool to explore the perception of disability in CP.
Databáze: MEDLINE
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