A roadmap for early psychosocial support in palliative care for people impacted by ALS-reducing suffering, building resiliency, and setting the stage for delivering timely transdiagnostic psychosocial care.

Autor: Rush CL; Center for Health Outcomes and Interdisciplinary Research (CHOIR), Department of Psychiatry, Massachusetts General Hospital (MGH)/Harvard Medical School (HMS), Boston, MA, USA., Lester EG; Center for Health Outcomes and Interdisciplinary Research (CHOIR), Department of Psychiatry, Massachusetts General Hospital (MGH)/Harvard Medical School (HMS), Boston, MA, USA., Berry JD; Department of Neurology, Massachusetts General Hospital (MGH)/Harvard Medical School (HMS), Boston, MA, USA., Brizzi KT; Department of Neurology, Massachusetts General Hospital (MGH)/Harvard Medical School (HMS), Boston, MA, USA., Lindenberger EC; Division of Palliative Care & Geriatric Medicine, Massachusetts General Hospital (MGH)/Harvard Medical School (HMS), Boston, MA, USA., Curtis JR; Division of Pulmonary, Critical Care and Sleep Medicine and Cambia Palliative Care Center of Excellence, Harborview Medical Center, University of Washington School of Medicine, Seattle, WA, USA., Vranceanu AM; Center for Health Outcomes and Interdisciplinary Research (CHOIR), Department of Psychiatry, Massachusetts General Hospital (MGH)/Harvard Medical School (HMS), Boston, MA, USA.
Jazyk: angličtina
Zdroj: Translational behavioral medicine [Transl Behav Med] 2023 Sep 12; Vol. 13 (9), pp. 722-726.
DOI: 10.1093/tbm/ibad024
Abstrakt: This commentary describes the current state of psychosocial care for people with amyotrophic lateral sclerosis and their caregivers. We provide recommendations for developing a roadmap for future research based on existing literature and our group's clinical and research experience to inform next steps to expand evidence-based psychosocial care for people with amyotrophic lateral sclerosis and their caregivers, with potential implications for a range of advanced illnesses.
(© Society of Behavioral Medicine 2023. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com.)
Databáze: MEDLINE