A randomized controlled trial evaluating the effects of social networking on chronic disease management in rheumatoid arthritis.

Autor: Lopez-Olivo MA; Department of Health Services Research, The University of Texas MD Anderson Cancer Center, Houston, TX, United States., Foreman JT; Department of General Internal Medicine, The University of Texas MD Anderson Cancer Center, Houston, TX, United States., Leung C; Department of Biostatistics, The University of Texas MD Anderson Cancer Center, Houston, TX, United States., Lin HY; Department of Biostatistics, The University of Texas MD Anderson Cancer Center, Houston, TX, United States., Westrich-Robertson T; International Foundation for Autoimmune and Autoinflammatory Arthritis, St. Louis, MO, United States., Hofstetter C; Patient Advocate, Toronto, Canada., des Bordes JKA; Department of Family Medicine, McGovern Medical School, Houston, TX, United States., Lyddiatt A; Musculoskeletal Group, Cochrane Collaboration, Ontario, Canada., Leong A; Healthy Motivation and the Global Alliance for Musculoskeletal Health of the Bone and Joint Decade, Santa Barbara, CA, United States., Willcockson IU; School of Biomedical Informatics, University of Texas Health Science Center, Houston, TX, United States., Peterson SK; Department of Behavioral Science, The University of Texas MD Anderson Cancer Center, Houston, TX, United States., Suarez-Almazor ME; Department of Health Services Research, The University of Texas MD Anderson Cancer Center, Houston, TX, United States; Department of General Internal Medicine, The University of Texas MD Anderson Cancer Center, Houston, TX, United States. Electronic address: msalmazor@mdanderson.org.
Jazyk: angličtina
Zdroj: Seminars in arthritis and rheumatism [Semin Arthritis Rheum] 2022 Oct; Vol. 56, pp. 152072. Date of Electronic Publication: 2022 Jul 16.
DOI: 10.1016/j.semarthrit.2022.152072
Abstrakt: Objective: Social networking has been shown to improve health outcomes in certain patient populations. While patients with rheumatoid arthritis (RA) increasingly use social networking to communicate with peers, the effects of these interactions are largely unknown.
Methods: In a randomized controlled trial, we compared RA patients who participated in a social networking group moderated by peer leaders and who had access to a static website offering RA materials with a control group, who only had access to the website. The primary outcomes were patients' RA knowledge, self-efficacy and empowerment. Secondary outcomes included participation in desired health behaviors, and satisfaction with peer support, among others. Follow-up assessments were conducted at 3 and 6 months. Participants who never signed in were excluded from the primary analysis.
Results: 105 participants were randomized to each group. Mean age was 52 (±12.4) and 92.4% were females. Knowledge scores improved in both groups, but only in the control group the differences observed at 3 and 6 months were significant (p≤0.02). Self-efficacy scores also improved in both groups, but only the differences observed at 6 months in the Facebook group were significant (p=0.02). When comparing groups, at 3 months the knowledge improvements observed in the control group were greater compared with those observed in the Facebook group (mean difference 0.4 versus 0.1; respectively, p=0.03). No other differences were observed in secondary outcomes between the 2 groups, except in peer support satisfaction. The Facebook® group reported greater peer support satisfaction in 3 out 5 subscales compared with the control group (p≤0.04).
Conclusion: Peer support satisfaction was higher in participants using an online social network, but this was not translated into greater disease knowledge or empowerment.
Competing Interests: Declaration of Competing Interest None reported.
(Copyright © 2022. Published by Elsevier Inc.)
Databáze: MEDLINE
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